Walking Through Cancer/Part 12

The First Assault on my Dignity

I’m starting to shed like a kitten. One short hair at a time. I’ve been waiting for this, hoping against hope that I’d be one of the lucky ones who didn’t lose their hair.

“You will lose your hair,” were the first words out of my oncologist’s mouth. Goodness, as though that were the most important thing to worry about! It’s been two and a half weeks since my first chemo session, and my second one is coming up this Tuesday. It doesn’t look promising.

My son and his family are meeting us in southern California for a visit to Disneyland over Thanksgiving weekend. I was so hoping to look pretty for them. And even though I know that beauty is only skin deep, it will still shock my grandkids to see their Bela bald. I haven’t washed my hair in ages, and it looks like dishwater, with no color left. I was going to see my hairdresser for a much-needed trim and maybe put a few of my zebra stripes back. But I may visit her anyway—to shave my head. Bless her heart, she said she’d shave it free of charge.

I think of Kate Middleton and that gorgeous mane of brown hair she had. I wondered out loud how she’d managed to keep it during all those months of chemotherapy. My hairdresser responded,

“They can do miracles with wigs these days. With her money and position, it would be easy to duplicate her hairstyle and no one would see the difference. But maybe her chemotherapy cocktail was less harsh and she has kept her own hair.”

The truth is, my hair is nothing to brag about. With each pregnancy, it continued to thin and is extremely short now anyway. Gone is the seventeen-year-old high school senior with long hair flowing down her back. So losing what’s left of my hair is no big loss. But another joke God has played on me is giving me the use of only one hand. I had found an array of colorful scarves to cover my head. But I can’t arrange any of them with only one hand. I have a few hats and they will be easier to slip on one-handed. So when and if the time comes, I’ll see what works best for me.

More changes. Slight nausea, for which I have pills. Less appetite, weight loss, but I’m enjoying a delicious food honeymoon! Preparing all the foods I always used to avoid because they put weight on my small frame: fried cheese sandwiches, spaghetti, “have a little ham with your mayonnaise,” and rich chocolate desserts. I can’t get too used to all this, though. It’s a temporary silver lining. But I’ll take it.

So, we’ll see how my next infusion goes next Tuesday. I’m hopeful it keeps working as well, and that the poison is killing all the t-cell bandits in my blood!

More hair loss? Meh…

War And Peace

“They sicken of the calm, who knew the storm.” ~Dorothy Parker

Do I see myself here? Somewhat, if I’m honest, as cynical as that quote is. Maybe in the beginning I was addicted to the drama of my daughter’s substance abuse disorder. That—and all the martyrdom I subjected myself to. But this did not bring me happiness. There are a number of ways, I have learned, to stay involved with an addicted child—ways that might have helped us both navigate this illness better. But for a long time I was stuck and didn’t know how to free myself of the downward spiral.

Over time, my obsession broke me down and wore me out. I do enjoy the peace in my life now, though I still experience some PTSD. So many years, it seems, of struggling to help her, and then for both our sakes, letting go of the struggle to save her. Addressing once and for all my own substance use—so that my presence could benefit my other loved ones. Don’t think for a moment that I don’t feel the pain of losing my girl. I do. The trauma of losing a child, to whatever illness, never goes away. But, in my experience, it isn’t so heavy to carry. It feels lighter now. Hang in there, Moms. Many things are resolved with better education and the passage of time. Keep loving yourselves and the world around you. Love is the great healer of all things!

“Loving, like prayer, is a power as well as a process. It’s curative. It is creative.” ~Zona Gale

Progress Not Perfection

Perfectionism just keeps us stuck in being dissatisfied with ourselves. It isn’t possible for us to be perfect all the time. Trying to be perfect is a terrible weight around our necks. If nothing else, it’s a huge distraction from doing the recovery work we are called to do. Let it go. We are enough just the way we are. When we can make peace with that—and I admit that it takes a long time— we’re well on our way to an unexpected freedom!

Change Is Good

From the blue Nar-Anon pamphlet:

Changing Ourselves

“Addiction is like a chain reaction. It is a disease which affects the addict as well as the family members, friends and co-workers. We try to control, cover up, and take on the responsibilities of the addict. The sickness spreads to those of us who care the most. Eventually, we begin to feel used and unhappy. We worry, lose trust and become angry. The addict blames us and we feel guilty. If only something or someone would change!

When we discover Nar-Anon, we find others with the same feelings and problems. We learn we cannot control the addict or change him. We have become so addicted to the addict that it is difficult to shift the focus back to ourselves. We find that we must let go and turn to faith in a Higher Power. By working the steps, following the traditions and using the tools of the program, we begin, with the love and help of our Higher Power and others, to change ourselves.

As we reach out for help, we become ready to reach out a helping hand and heart to those in need of Nar-Anon. We understand. We do recover. Slowly, new persons emerge. Change is taking place.”

Though I have changed and grown through my work in the program, I. of course, still love my daughter and am available to help her if she reaches out to me for help. The difference is that I’m a healthier person now and am able to make the tough choices I couldn’t make years ago. I pray she finds the strength to come back to her family. We can’t get back the lost years, but I still have hope, like the warm sun shining on my face, and keeping my love strong.

Positive Persuasion

From Each Day A New Beginning, September21

“Praise and an attitude of gratitude are unbeatable stimulators…we increase whatever we extol.” ~Sylvia Stitt Edwards

Our attitude in regard to any situation attracting our attention influences the outcome. Sometimes to our favor, often to our disfavor if our attitude is negative.

Thankfulness toward life guarantees the rewards we desire, the rewards we seek too often from an ungrateful stance. The feeling of gratitude is foreign to many of us. We came to this program feeling worthless, sometimes rejected, frequently depressed. It seemed life had heaped problems in our laps, and so it had. The more we lamented what life “gave us,” the more reasons we were given to lament. We got just what we expected. We still get just what we expect. The difference is that the program has offered us the key to higher expectations. Gratitude for the good in our lives increases the good…”

It’s hard for me to improve upon these words. Except to say that my daughter is still lost to me after 22 years in the world of drugs and all that it accompanies. As she has gone deeper into the weeds of that life, my grief over losing her has transformed itself into a better  place, a place that works for me. (read a great Al-Anon book, Opening Our Hearts, Transforming Our Losses, for sale on Amazon).

When my nightmare began all those years ago, I was incredulous that this was happening to my daughter, as though she were any different from all the vulnerable young people out there. She wasn’t and still isn’t. The more I fought to save her, the more my own health and well-being deteriorated.  After several years of doing everything I could think of (much of it misguided help), I finally got the message that I was powerless over her disease. And that’s when I started to turn toward the light.

The miracle of all the 12-step programs is assuring us that we have the power to change. I’m only as miserable as I make up my mind to be. In the beginning, I blamed all that misery on my daughter’s poor choices, of course, feeling more victimized than ever. But when I gave up that martyred attitude, and took back my own power, my life started to work better for me. I never stopped loving her and praying for her. But I have two other children, grandchildren, a loving partner… and the list goes on.

Every morning when I wake up, where should I put my focus? Should I fall back into bed and immerse myself in a mother’s endless grief? God knows I’ve wanted to often enough. Or should I focus on those kids and grandkids who need me now?

“The Road Less Traveled”

I think we, who are willing to be in this room and undergo personal change, are brave souls.

When I joined Al-Anon, I was in my Fifties, and anxious to save another person I loved.  But oh what a joy it’s been to let go of that obsession, which was becoming so shrill and counterproductive.

I was relieved to turn the focus back on myself and learn that my faulty attitudes were the source of my pain, not the people around me.

Regarding the amends steps, it’s possible to overuse them, just as we might exaggerate our negative defects in the 4th step. I’ve done both! That’s why it’s so important to understand the purpose of amends: reaching personal freedom.

These are intended to be hopeful steps, not self-flagellation. Making this list and then acting on it is just another way to weed our garden. My husband’s always reminding me to weed close to what we’re growing, so that nothing interferes with the growth of the plant.

Making amends is not always pretty, and rather than freedom I sometimes look for forgiveness and closure. With my daughter, Annie, she threw them right back in my face. So I knew I was on the wrong track to expect absolution from her, and my sponsor helped me appreciate my efforts and then let them go.

My real reward has been surviving that loss without the need to punish myself for it.  Truth is, I’m really not that important! Things happen in life, and it’s not always my fault.

How Important Is It?

I will ry to keep things in perspective in terms of importance. Keep a clear head and don’t get sidetracked by emotional drama.

For example, if closing the door to the microwave wakes someone up, how important is it? The person we woke up should ask him/herself, “Is it worth having a fight over?” The people most vulnerable to this slogan sometimes just thrive on the drama. Don’t buy into it.

Move on, distract, find a healthier and larger perspective. We can get so bogged down in pettiness that we stop seeing the larger picture. Today I will try to remember what’s most important in my life—getting along with my partner—and do what I must to protect that.

Gone But Never Forgotten

My unsent letter to my child:

Dear Annie,

Ironic, isn’t it, that you have become my teacher and not the other way around—teacher of life, teacher of love, and beacon of surrender.

I’m so grateful that you were born, even though at times I’ve felt otherwise. God works in mysterious ways, doesn’t he? Though you haven’t been in my life long, and not always happily, it’s been your very existence that has propelled me into a serenely spiritual life, even happiness. I never would have done the work necessary to reach this place without your inspiration.

You are my child, my teacher. As I’ve stumbled on this rocky path, my thoughts of you have guided me; they guide me still.

All that I’ve become are gifts from you, my daughter: life lessons, trial by fire. How do I honor you?

By living well—By loving well.

Mom

“Let Go And Let God”

Let Go and Let God (p. 28, 95, 107, 125131,n163, 220, 294, 361) “Every day there are decisions to be made and problems to be solved. When we notice irritations growing into tensions, tensions into near-panic, and old fears returning, it is time to stop and turn to God. We find that when we supply the willingness, He supplies to power.”

Remember, “our best thinking got us into the rooms.” In other words, our minds can be dangerous places to go without some help. In Al-Anon we turn to a Higher Power. It can be God, a tree, or the group itself. As long as it’s not just us. Our egos and willfulness can blind us so much to taking a healthy course of action. And we’re just trying to help our children, so it’s easy to rationalize and justify our actions. That’s where educating myself about the disease gripping my daughter has been so critical for me. Over time I finally accepted that I didn’t have the power to save her from her disease. That was a hard pill to swallow, but a necessary one. I learned to let go and concentrate on what I could control. That’s when I started to feel free and serene and able to move forward with my life. I wish the same for all my brothers and sisters in these rooms. God Bless!

Relax!

What is your favorite slogan? Page quotes are from One Day At A Time:

Easy Does It (p. 19, 111, 189, 238, 301) “When we come into Al-Anon, burdened with problems and confusion, we are confronted with a bright light of hope. This may tempt us to try too hard to learn, too quickly, all there is to learn about the program.”

So, take in what you can when you can, at your own pace. Many people leave before the miracle happens because they felt overwhelmed. I’m so very glad I didn’t and stuck around.