Essays and Poems

Walking Through Cancer: Part 20

Marilea C. RabasaLeave a comment

Midway and Beyond

Christmas and New Year’s have come and gone this year, with 2025 freshly starting. After the year I’ve had on the health front, and the rest of the country on all fronts, it’s time now to take stock if we haven’t already and plan for the year before us to be a good one. Maybe not on all fronts, but I’ll settle for remission from my lymphoma after treatment ends on February 3rd.

To that end, my oncology team at Fred Hutch Cancer Center never misses a step in my monitoring. A midpoint PET scan was scheduled for January 6, and I always dread those tests. They don’t miss a thing. The radioactive dye they inject into me and allow to marinate for an hour reveals all the “hot spots” in my body. Hot spots are where many infections reside, and cancer cells in particular love them. So with some trepidation I looked at the results, remembering that I still have two more infusions to go.

My tumors are mostly gone, and that’s good news. Ninety percent of them have disappeared. I felt this had been happening, just based on how I’ve been feeling since my treatment began in October. The CHOP chemotherapy formular has been working to fight the proliferation of t-cells in my blood, which had been sapping my strength. They’re not all gone, I’m not there yet, but hopefully two final infusions will zap the last tumor in my groin. Maybe the PET scan in February will show me in remission. Six infusions seem to be the magic number.

Mindful that t-cell lymphoma tends to be refractory, I’m aware that whatever amount of years I’ve been granted may come to an end eventually. But why think about that? If fighting a deadly cancer has taught me one thing, it’s to focus on the here and now and utter appreciation for whatever good is happening in my life. When have I ever been motivated to behave this way? When have I ever learned to fully appreciate all that I have and all that I’ve been given? It’s like being a “grateful” alcoholic. If I hadn’t found the tools to help me be the best person I can be, I probably would have lived my life pretty much operating at 50% of my potential. Now I have the opportunity to be better and do better. And that all translates directly into improving my relationships. This is the basis for my happiness, how I relate to other people, and the end of my isolation.

I just celebrated my seventy-seventh birthday. This is quite a milestone! Every new year asks us to take stock, and I believe birthdays do that as well. But past birthdays are just that: milestones. The journey they mark is the thing.

“Age is irrelevant.  Ask me how many sunsets I’ve seen, hearts I’ve loved, trips I’ve taken, or concerts I’ve been to.  That’s how old I am.”

Author unknown

Walking Through Cancer: Part 19

Marilea C. RabasaLeave a comment

The Rewards of Friendship

It’s part of the human condition to take things for granted sometimes. We have a myriad of excuses, of course. We wouldn’t want to do periodic self-assessments to see if we need to change anything. The older we get, the more set in our ways, the more prideful we become. We’re doing fine, we say, it’s young people who need to shape up and emulate us!

This is why I am a “grateful alcoholic.” If I hadn’t been a substance abuser and had to face terrible personal consequences because of it, I might never have tried to change my character. Enter Twelve-Step recovery, a guide for living that helps us be the best people we can be.

That’s it, just a few guidelines to follow, many of which strangely echo the Golden Rule. Most of my childhood friends don’t remember me because I was very unhappy in that town. When we moved away, I never looked back, and neglected to keep up with them, sure that it would be of little consequence.

My oldest friend in northern Virginia was my best friend for years. Our children grew up together, and we were a constant support for each other. But after I moved West with Gene, I dropped her as well. Out of sight, out of mind?

But I’m happy to say that I reached out to Gail recently and we arranged a Zoom chat on her account. First, the amends. I was so sorry for carelessly discarding her like I did. “No apologies are necessary.” she offered, “we all have busy lives.” And we proceeded to chat as though no time had passed. What a gift to us both to reconnect like that. And all because of cancer.

Cancer can be a deal breaker in some ways. It was telling Gail about my cancer that was the conversation opener in my email, and something she responded to, predictably, with love and concern. It can serve as a motivator in so many ways: from valuing our days as though they were numbered—and living accordingly; to making amends to people we’d been avoiding because we can do it later.

It has to do with vulnerability. Allowing myself to be vulnerable is hardly a sign of weakness. I’ve been told over and over from people who’ve read my memoirs that it’s a particularly appealing trait. If nothing else, it evens the playing field among friends and acquaintances. No more need to compete. We are all equals.

Before I went into recovery, my outside didn’t match my inside. If I had any friendships at all, most of them were pretty superficial. But as I’ve become more comfortable in my skin, I’ve become more honest with everyone.

And the rewards? Many more friends, an end to loneliness, and deep gratitude that I have been given a second chance to live life better than before. I’ve enjoyed such a wonderful life. And now I have the good sense to appreciate it and reap the rewards.

Walking Through Cancer/Part 18

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                                          Testing My Mettle…Yet Again

Last spring when I had raging carpal tunnel syndrome in my hands AND a viral mouth infection so severe I couldn’t eat anything but pablum, I whined that “it never rains, it pours.” Well, those two maladies were a walk in the park compared to falling down the stairs and breaking my humerus three days before my first chemotherapy infusion.

“God,” I said looking up as though that were where He lived, “You are really testing me. Geez, isn’t t-cell lymphoma bad enough without having to cope one-handed with my arm in a sling?”

It’s a good thing I couldn’t see Him because I knew he was smiling, sure that I would meet this challenge just fine. And I would have slugged him, I was so mad.

At myself, of course. I talk about remaining teachable and I think THIS time my self-will has wrought a bad enough consequence to make me stop in my tracks. How did this happen? I failed to turn the night light on, was nearly finished barreling down fourteen steps in slippery socks, missing the last one, and plummeted onto my left side at the base of the stairwell.

My first thought: I will not be defeated by this. I got up and was grateful I could walk without pain. More gratitude: it was my left side and not the dominant right. I went to my phone and called 911.

Camano Island Fire and Rescue was there right away and whisked me off to Skagit Regional Hospital in Mt. Vernon. X-rays were taken, and I waited in the outer area for my friend to come and take me home. Oh, did I mention that Gene had just that evening flown to San Francisco for the memorial of a friend? Timing…

I was quite alone in my house, but not for long. The front door was constantly revolving all weekend with friends coming over to teach me how to wear a sling, cut up vegetables, open bottles for me, perform a myriad of tasks reserved for two-handed people. I’m so grateful for them.

My son took me to my first infusion the following Monday. He held his tongue, but I knew he was furious that I could allow such a disaster to happen at the start of my chemotherapy. When Gene flew back the next day, more dismay and head-shaking that I could have been so careless.

So there you have it. This occurred on October 17, just eight weeks ago. It was fractured badly and the ice cream is nearly off the cone. Still quite painful, it’s not going to heal on its own. So I saw a shoulder surgeon this week and he’ll schedule surgery for as soon as possible, when treatment is over.

The sooner the better, so I can get through rehabilitation therapy and hopefully get back to paddling my kayak this summer. Am I too ambitious? Nah.

And I’m nothing if not determined…

Walking Through Cancer/Part 17 conclusion

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A Changed Life

It’s a fortunate person who has evolved enough to realize that he needs to change in order to live his best life. I am one of those fortunate adults.

Spending many weekends down in Seattle at my son’s house to bond with my young grandchildren, I was regularly drinking in his basement where I’d been sleeping. I was not ready to work on myself and give up my thirty-year habit. Then one day he and his wife took the time to confront me about it.

We sat down together at their dining room table, and he minced no words:

“Mom, we know what you’re doing in the basement. All our vodka bottles are empty.”

Immediate shock, humiliation, and the realization that I had not been fooling them all these years. If this intervention had happened years ago, I’m sure that I would have responded like this:

Full of indignation, I would have shouted, “How dare you speak to me like this? You owe everything you are, your education, your trips, the love and support I have given you since the day you were born, primarily to me!”

But on that day, April 25, 2017, I responded differently. I said very little, just that I was so sorry that I’d been behaving so recklessly for so many years. They never asked me to join AA. That was my decision. And from that day, I’ve never thought about drinking alcohol. At last, this student was ready for the teacher. I’m so grateful that I’ve remained teachable.

Since then, my life has improved exponentially. I continue to be devoted to my Al-Anon groups. But, a “double winner” I am called, I also attend AA meetings even more frequently. Some of the meetings are just for women, and the other ones I attend with Gene. This awakening on my part has brought Gene and I closer together. He had endured my drinking in all our years together, but knew better than to pressure me to quit. That desire had to be born deep inside of me, and not to please him, or my son, or anyone else. I had to believe that I was worth the effort to stop drinking.

My relationships have improved since I’ve given up alcohol. The twelve steps are essentially tools to help us realize our potential as human beings. The ‘God steps’ I spoke of earlier are a lesson in humility, where I let go of my arrogance enough to admit my powerlessness over people, places and things. The next steps involve looking at ourselves honestly and becoming aware of our defects. This exercise is followed by sincerely making amends to people we have wronged.

Finally, “having had a spiritual awakening as a result of these steps, we tried to carry this message to alcoholics, and to practice these principles in all our affairs.”

This is the transformation I write about in all three memoirs, and it’s a glorious one, indeed.

Walking Through Cancer/Part 17 continued

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                                                         Healing

When I was seeing a counselor at work in Virginia, she suggested I try a 12-Step group called Al-Anon.

“Oh no, that’s not for me,” I responded, convinced that I had all the answers to Annie’s problem. Yet I was desperate for help, and was willing to try anything, so I began attending a regular Saturday morning meeting. But I was essentially paying lip service to a program I was too arrogant to believe in. I felt I had all the answers and was unable to accept her substance use disorder as a disease I had no control over.

The first three steps of all the 12-Step programs are the “God Steps.” We admit we are powerless over whatever it is that we are trying to free ourselves from; in my case, trying to control my daughter. But I needed to learn to let go of Annie. “Let go or be dragged,” they say in Al-Anon.

After six years of attending meetings, and still unable to save her with the only kind of love I could offer, I suffered the clinical depression I spoke of in the previous segment. That’s when Gene and I left Virginia and moved to New Mexico. We enjoyed a decade of living in “the land of enchantment.” But Annie was still floundering, and I stepped up my drinking. I couldn’t bear the pain of losing her.

My son and his wife had moved to Seattle for work, and they started having children.

“Mom, please think about moving up here with us so you can be closer to the children and watch them grow up.”

This was a no-brainer for me and Gene. We had spent the early years of our lives together paddling canoes all over the country, so being near water to continue that pursuit would complete us. It was the one thing that was missing in the desert of New Mexico.

I quickly sold the condo I owned in Virginia and bought a nice home on Camano Island, an hour north of Seattle. Gene wasn’t quite ready to let go of his orchard and the sunshine of New Mexico, so we went back and forth between our two homes for four years. But we eventually got tired of all the fence-sitting and made a decision to sell our little pueblo house to live full-time on Camano Island.

Life was good. I had begun publishing award-winning memoirs while still living in New Mexico, and was about to publish my second one in 2020. Having joined Story Circle Network in 2013, I used their publications to write  a number of short pieces and see them in print. Story Circle Network is an outstanding and versatile organization founded by Susan Wittig Albert back in the 1990’s, specifically as a venue to encourage women to find their voices and write.

Between that and publishing my memoirs, the catharsis I needed to open my eyes and begin the healing process had begun.

Walking Through Cancer/Part 17

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   No Spirit At All

Learning to live well is a skill that many men and women aspire to, especially as we grow older. Some of us are aware of the wreckage we left behind if we were burdened with demons like alcoholism or other forms of substance abuse. Even addictions like gambling, sex and workaholism can interfere with a more functional life.

Ever since I was a teenager, I had struggled with eating disorders, which seems to be a common theme among many young people who grow up in an alcoholic home. That led me back in the 1960’s to diet doctors and amphetamines, which were easy to acquire. And I loved them because they relieved me of my depression, the underlying cause of my misery.

I, nevertheless, proceeded through life doing pretty much what my parents expected me to do: marry a suitable guy and raise children. My husband, three children and I lived a privileged life in the Foreign Service, living overseas for fifteen years. But I wanted a career, and my Cuban husband did not approve. So rather than work it out for the sake of us all, I insisted on a divorce and moved back to Virginia with the children.

This was a very heady time for me. I landed a job teaching English as a Second Language in Arlington Public Schools, and threw myself back into the teaching career I had begun years earlier in Nicaragua. My children were ten, twelve, and fourteen at that time, and I essentially left them alone to raise themselves. Their father was very generous with child support, but he was so angry about the divorce that all he gave us was money. He refused to share custody with me. And that did a grave disservice to our children.

And so continued a period of years where I received great satisfaction in the classroom. But I was a far less successful parent. The kids were hurting badly, but did well enough on the surface for me to rationalize their pain. Annie, my middle child, however, turned to drugs when she had barely graduated from George Mason University, and has been in and out of that hellish life for twenty-two years. Hence, the wreckage I spoke of. I did have her in therapy early on for about ten years, but to no avail. I eventually suffered a nervous breakdown from my repeated attempts to “save” her, and took early retirement from a job I adored. Another price to pay for my self-absorption.

My partner and I moved to New Mexico to start over, and enjoyed a decade running an orchard and selling produce at the local markets. But I had years earlier in Virginia traded my food obsession with alcohol and embarked on thirty years of drinking. I was a pretty functional alcoholic, never missed a day of work, but no more evolved spiritually than the man in the moon.

My real work was soon to begin.

Walking Through Cancer/Part 16

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                                         The Graveyard Shift

This is bizarre. It reminds me of when I had carpel tunnel syndrome last spring: I was in such burning pain that I couldn’t sleep. But that passed with time, and this insomnia will, too.

My new sleep schedule: I fall asleep between 7:00 and 9:00 at night; then I’m up at 11:30ish; I watch videos until my eyelids start drooping, usually a couple hours; then fall back to sleep until, if I’m lucky, 4:00 am, when my day begins. I drink a mocha, check emails, etc. At 5:00 I eat breakfast; at six I can start the work of the day: my writing. This consists of my daily gratitude journal and for the past six months my cancer diary. It’s pretty long, over twenty-five chapters, both before and after my diagnosis.

By 10:00, I start to fade and take a nap, about an hour. But before I nap, I eat a sizeable protein snack. After I wake up, I work on my computer until 12:00, lunchtime. Well, I guess some things coincide with real life! I go downstairs to watch Nicole Wallace, and even though the news is depressing, I love to listen to her  guests, especially Tim Miller.

Then I’m ready for another short nap, another snack, more writing, and then dinner with Gene. So, you see the routine is trying to glide into some semblance of normalcy. If I could just sleep through the night…

Why the insomnia? I only take prednisone for five mornings in a 3-week infusion cycle, so I’m not convinced it’s that, though it has a monstrous reputation. Then I read an article called “Why Do Cancer Patients Have Anxiety?” Geez, ya think?

Out of boredom, I started playing Dr. Google again. I read that my type of non-hodgkins lymphoma is not only incurable but has a very poor prognosis. Tell that to the lady who whizzed through 6 miles of Disneyland without getting tired!

The truth is that they are making huge strides in cancer research every day. Right now I’m undergoing my first line of treatment. My oncologist also has me in a clinical trial concurrent with my chemo. The theory is that if I go into remission, it might last a few years longer. Dr. Poh gave me a gold star when I saw her on Monday.

I believe in my heart that remission awaits me. I just don’t know. What I do know is that t-cell lymphoma is usually “refractory,” meaning it will come back with a vengeance, resisting the chemo I got before. This is when I’m glad it’s nearly 2025 and not twenty years ago. There are a number of new treatments they will surely try. But, as usual, I’m getting ahead of myself. I’m only halfway through this first line of treatment. February 3 is my last infusion. We’ll see what the PET scan shows, if  Dr. Poh can claim me to be in remission or not.

Fingers crossed!

Walking Through Cancer/Part 15

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                                                 Reprieves and Vacays

Tickets to Disneyland had been purchased months ago, long before I started chemotherapy with a broken arm. But Dr. Poh assured me that she would try to work my infusions around the trip to California. And she did. I was determined to weather all the discomforts of airplane travel with a broken arm in a sling. My cancer team not only cleared me to go, they arranged the chemo cycles around it so that I would be feeling my best during that week. I’m just amazed by the humanity of the staff at Fred Hutch Cancer Center. I’m much more than just a cancer patient in need of a remission to enjoy a few more years. I also want to have fun with my family as often as possible, and they fully cooperated with my wishes.

We flew into Santa Ana Airport the Saturday before Thanksgiving and spent a whirlwind week in Los Angeles. Sunday we drove to Santa Monica to have lunch with Gene’s sister. That’s a lovely town. Tuesday we visited the La Brea Tarpits in downtown LA, where the remains of Ice Age animals had been found by paleontologists. On Wednesday, we returned to LA for a visit into Universal Studios. A bit overwhelming for two old fogies like us. We took a few rides, but really enjoyed the studio tour. I was amazed at my stamina after walking three miles. But my feet were starting to swell.

The next day was Thanksgiving when my family flew in from Seattle. We all met at a restaurant for turkey and all the fixings, which tasted great. We said our goodbyes and planned to meet the next morning at Disneyland.

Six hours of fun and frolic, I don’t remember when I’ve had so much fun. My son was especially solicitous and protective of me, particularly after he saw my feet. Not painful, just unsightly. By 6:00, we had walked six miles and I was still full of energy. My son was amazed at my stamina. But my feet were so swollen from edema that I had to put on some uncomfortable sandals just to keep walking. We all went out to dinner, and I surprised and delighted my grandkids by taking my hat off.

“Oh wow, Bela, you look amazing!”

“You look like Captain Picard!”

Cameras flashing, I had finally overcome my shyness at being bald. I proudly sent a picture around to my friends to see their reactions. I’m not ashamed or embarrassed. It’s my sign of hope that I may stay alive.

My feet required ice and elevation to return to normal. And flush out my kidneys with lots of water to shed the edema. I’m not sure what the lesson is for me. I can’t walk long distances?

A totally worthwhile trip. I’m so glad I made it. Life is too short to put things off. You never know when yours will end. And I’m nothing if not determined.

Walking Through Cancer/Part 14

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                             Pink Clouds Don’t Last Forever

It would be so nice if they did.

I’ve had two chemo infusions, and the first one was such a breeze that I wondered what they put in the cocktail. No side effects, and I marveled at how easy chemotherapy was now. I felt wonderful afterwards, and the best part was that the fatigue in my legs was gone. I have energy that I haven’t felt in many months, and it’s been great to experience, especially when I remember how active I used to be with Gene. To have that taken away was hard.

So with my infusion last Tuesday, I expected the pink cloud to last. But it’s gotten a little rougher. The nausea has been really hard, so I keep popping nausea pills which have their own side effects. Heck, no one ever died of nausea. I’ll get through it, but I suspect it might get worse before it gets better. Chemo treatments end on February 3, and then I hope my hair starts to grow back quickly. Oh, I can dream…

All this is a small price to pay for possible remission from my lymphoma for ten more years. The Fred Hutch Cancer Center where I go to see Dr. Christina Poh is one of the best cancer centers in the country, right up there with Sloan-Kettering in New York and Anderson in Texas. And it’s right in my back yard. I’m so grateful to all the doctors and nurses there. They have pulled out all the stops and are exceptionally thorough. And no matter what happens down the road, I know that I’m getting the best care available to me. No doubts, a very secure feeling.

On the home front, my life is so fulfilling. There’s nothing like getting sick to inspire your friends and family to show how much they value you. We humans can be so lazy in that regard. I hope I never get that lazy again, and continue to pay it forward. Next Saturday Gene and I are flying to Anaheim, CA for a week with my kids and grandkids: Disneyland, Santa Monica, and LA! I’ve never been there and am so excited. We’ll go to a restaurant for Thanksgiving dinner, and it will be divine to not have to do all that cooking for once!

Then we fly back and I have two more infusions before Christmas. Gene will step up for me and do all the heavy lifting to prepare the house for Christmas: get the tree and decorate it, make dinner for us all while I hide behind a mask the whole time.

I used to dread the holidays because they were so sad for me as a child. But I’m not a child anymore. Now I see them as yet another opportunity to celebrate my life with my family in the present moment. And oh, what joy we give each other now. If we look for joy, we will find it.

Walking Through Cancer/Part 13

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                                               The Second Assault

Back in 1951, my father was 40 years old, with teeth like chalk. He drank too much and indulged in too many sweets. Predictably, he had so many cavities that his teeth were falling out. In those days, reparative work in dentistry was not what it is today, and he had what were left of his teeth ripped out and started wearing a full set of dentures.

As luck would have it, I inherited his soft teeth, and have had to undergo the same amount of reparative work in my own mouth. And for similar reasons. But dentistry has made remarkable strides in the last generation, and dentures are actually frowned upon now, not unless you are indigent. And, of course, they are the cheapest solution, but dentists want to cash in on all the new ways to save teeth: crowns, bridges, gum grafts, implants. I’ve had them all.

So when I got cancer, I knew that a common side effect to chemotherapy would be mouth sores and infections, along with possible damage to my existing teeth. This has happened to me. I usually wear a brace on the few lower teeth I have in order to protect them while I eat. And lately, I’ve become remiss in wearing it. I woke up this morning and felt one of them looser than before. So I quickly put the brace back in place and vowed to do no more chewing, just eat soft foods for the duration. This will not be hard for me: remember that I’m indulging in spaghetti and mashed potatoes, cake and ice cream lately. I’ve lost too much weight and really need to go in the other direction. Silver lining? You bet, and I’m relishing it!

To make this long story short, I will probably lose that tooth before I end my chemotherapy infusions. Hence—the second assault. More time spent in the dentist’s chair, a lot more money enriching my dentist from the cost of implants and whatever else I may need. It goes with the territory and cancer treatment.

The rest of my skeleton needs to be coddled as well, especially now. I have full-blown osteoporosis already, and I cannot afford to fall down again. But haven’t I said that before? J

If a smashed upper humerus and my arm in a sling for two months, with all the pain that accompanies it—and in the midst of all my cancer treatments—hasn’t taught this student a hard lesson about stairs and lights and slowing down…well, I do hope I continue to remain teachable. I have been duly humbled by this latest accident. And I’m hoping for a complete recovery in my arm, after I undergo much physical therapy.

But there are silver linings everywhere in life, even with cancer. I’ve written about them often in these twenty-two diary entries. The more I feel the darkness approaching me, the more I turn toward the light. It’s blinding sometimes!