honesty

Walking Through Cancer/Part 16

Marilea C. RabasaLeave a comment

                              

                                         The Graveyard Shift

This is bizarre. It reminds me of when I had carpel tunnel syndrome last spring: I was in such burning pain that I couldn’t sleep. But that passed with time, and this insomnia will, too.

My new sleep schedule: I fall asleep between 7:00 and 9:00 at night; then I’m up at 11:30ish; I watch videos until my eyelids start drooping, usually a couple hours; then fall back to sleep until, if I’m lucky, 4:00 am, when my day begins. I drink a mocha, check emails, etc. At 5:00 I eat breakfast; at six I can start the work of the day: my writing. This consists of my daily gratitude journal and for the past six months my cancer diary. It’s pretty long, over twenty-five chapters, both before and after my diagnosis.

By 10:00, I start to fade and take a nap, about an hour. But before I nap, I eat a sizeable protein snack. After I wake up, I work on my computer until 12:00, lunchtime. Well, I guess some things coincide with real life! I go downstairs to watch Nicole Wallace, and even though the news is depressing, I love to listen to her  guests, especially Tim Miller.

Then I’m ready for another short nap, another snack, more writing, and then dinner with Gene. So, you see the routine is trying to glide into some semblance of normalcy. If I could just sleep through the night…

Why the insomnia? I only take prednisone for five mornings in a 3-week infusion cycle, so I’m not convinced it’s that, though it has a monstrous reputation. Then I read an article called “Why Do Cancer Patients Have Anxiety?” Geez, ya think?

Out of boredom, I started playing Dr. Google again. I read that my type of non-hodgkins lymphoma is not only incurable but has a very poor prognosis. Tell that to the lady who whizzed through 6 miles of Disneyland without getting tired!

The truth is that they are making huge strides in cancer research every day. Right now I’m undergoing my first line of treatment. My oncologist also has me in a clinical trial concurrent with my chemo. The theory is that if I go into remission, it might last a few years longer. Dr. Poh gave me a gold star when I saw her on Monday.

I believe in my heart that remission awaits me. I just don’t know. What I do know is that t-cell lymphoma is usually “refractory,” meaning it will come back with a vengeance, resisting the chemo I got before. This is when I’m glad it’s nearly 2025 and not twenty years ago. There are a number of new treatments they will surely try. But, as usual, I’m getting ahead of myself. I’m only halfway through this first line of treatment. February 3 is my last infusion. We’ll see what the PET scan shows, if  Dr. Poh can claim me to be in remission or not.

Fingers crossed!

Walking Through Cancer/Part 10

Marilea C. RabasaLeave a comment

One Tough Old Bird

Nearly three years ago, I tripped on a towel in our bathroom and fell, whacking my head against the porcelain tub. I broke six ribs, had a pneumothorax, and a teardrop fracture in my neck.

It was my fault, moving too fast in an unlit room, I made a promise to myself: I can never fall again. Period. Well, “Promises are like piecrusts…” Is that how it goes?

Five days before my first chemo infusion, I made the same mistake. I had a fall that resulted in a significant fracture of my humorous (upper arm). OMG, I can’t believe my timing! I’ve started out in a sling and the orthopedist saw me yesterday. Because of the cancer treatments, we’ve elected to avoid surgery for now and let it heal in the sling for six to eight weeks.

“Marilea, the human body is a remarkable machine. It will heal itself if we are patient and let it. If you use the sling for the next two months, slow down, and use the time to rest, it will eventually heal itself. You will need to do regular exercises and maybe work with a therapist regularly, but I think we can avoid surgery, which is problematic at your age, not to mention your cancer treatments.”

“Thanks, Doc. I’ll learn to be patient and let my arm heal on its own. See you next week for a checkup.”

Ladies, have you ever tried to get dressed, pull your pants down to go to the bathroom, floss your teeth, cut vegetables or an apple, just live your life the way two-handed people do? It’s damned inconvenient. And slows me down, probably a good thing.

So here’s another lemon in my life: the broken arm.

Lemonade? It could  have been SO much worse. I could have had a concussion, broken a hip, compromised my legs and ability to walk. Walking, oh wow, that’s number one on the gratitude list. If that were compromised I might have just had to put everything on the cancer side of the drama on hold until I could walk again! So lots of silver linings to pay attention to and deeply felt joy and gratitude that it’s just a broken arm. Oh, another glass of lemonade? My ability to see all the silver linings and allow them to elevate my spirit.

The spiritual part of this journey is absolutely essential to holistically healing my body. My alcoholism recovery is the basis, of course, for all this healing and has saved my life. Minimal whining, endless joy and gratitude, A deeply held faith that life is unfolding for me as it was meant to. I’m in God’s hands. And however much time I have left on this earth, I will live it to the best of my ability, and accept, gracefully accept, God’s will for me.

Amen, and stay tuned for the continued cancer part of my saga!

Taking Ownership Of My Own Recovery

Marilea C. RabasaLeave a comment

Many people are not strong enough to battle the terrible force of substance use disorder on their own. Application of the Twelve Steps had proven successful over and over again since they were put together by a couple of alcoholics and their friends back in the late 1930’s. Substance abusers need help; some say they need spiritual help. Our society is full of naysayers—skeptics who eschew these programs that are found in every major city across the country, and in big cities, in many of the churches, meeting three or four times a day. There’s a reason for the popularity of Twelve-Step programs: they work for many people. So I promised myself I would try harder now. My daughter was worth it. My daughter was worth it?

There is no one place on this journey to pinpoint where I discovered that I was worth it. I knew what a flawed human being I was. I was aware of my mistakes along the way—big ones and little ones.

But as I was starting to embrace the principles found in these Twelve Steps I was reacquainting myself over and over again with my own humanity and feeling my self-worth solidify with roots into the earth. None of this growth in me would have occurred if my daughter’s illness hadn’t pushed me onto this path. And I would always—still—reckon with the survivor guilt that has challenged my right to be happy while my daughter still struggles with this cruel disease.

There are many who view Twelve-Step groups as cultish and unattractive. There’s such a powerful stigma in our society against substance use disorder in all its forms that, I suppose, families of substance abusers suffer from guilt by association. Early on in my recovery my sister once said that it must be nice to have “those people” to talk to. But as she’s watched me grow and change these past few years I think she’s developed a healthy respect for the Program.

To this day, though, she has never discussed with me the dark side of our father, the alcoholic. Maybe she never saw his dark side, as I did. To her, he was the best father in the world, and I have no need to invade that sacred place where she holds him in her heart. In fact, I agree with her. He was a very loving man who passed on many gifts to his children and grandchildren. Yes, he was sick, and he died too young because of it. But just as I have forgiven my mother for any ways she may have hurt me so have I lovingly accepted my father’s illness. And in learning to forgive my parents and others who have wounded me in my life, it has become easier for me to forgive myself for my own shortcomings and the part they played in hurting my own children.

I, being a substance abuser, a daughter of one and a parent of one, have found myself quite at home among these seekers of peace and serenity. I’ve been in the right place for twenty-three years now, and I cannot begin to tell you the gratitude I feel for the wisdom in this simple program that has helped me to look forward to the sun coming up every day—and to embrace my life in its entirety.

Something To Leave Behind

Marilea C. RabasaLeave a comment

My shell collection is extensive and surprisingly sturdy. I’ve dragged them around with me from all my travels over the years. But I’ve run out of space to display them. And I wonder why I’ve collected so many. What have they represented to me? Maybe the assurance that something of me will be left behind.

Ego. Such a fundamental part of the human condition, the very thing that makes me human. And it’s my ego that has the power to separate me from God.

It’s ego that keeps me struggling in my relationships, ego that keeps me from accepting things as they are and feeling content with what I have. Ego and my willfulness beneath it that traps me in my restless search to outdo myself and others.

And it’s ego that makes me want to leave an imprint in the sand.

All human beings wrestle with ego, but substance users have found a solution that elevates them from their soul sickness: losing themselves in substances and behaviors that provide oblivion for a time. “We want what we want when we want it.” That tired old phrase smacking of egocentricity and immaturity.

Substance users in their disease are all about themselves. In Alcoholic’s Anonymous, one definition of an alcoholic is an egomaniac with low self-esteem.

To be “relieved of the bondage of self,” as the Third Step Prayer states in the Big Book, I’m learning how to nurture a relationship with God and remember my place in relation to him.

My importance is next to nothing in the scheme of things. This keeps me right-sized and humble.     

I’m just another grain of sand on the beach.

© Marilea C. Rabasa, 2020. Excerpt from Stepping Stones: A Memoir of Addiction, Loss, and Transformation (She Writes Press).

The Healing Power Of Writing

Marilea C. RabasaLeave a comment

My friend from my old Tuesday night Al-Anon meeting in Virginia sent me an email. He said he had just read my book and took it to his son to read who is serving a six-month sentence in jail. Justin was so moved by the book that he has decided to write his own story.  I am thrilled to have been a source of inspiration for him, because just the act of writing my story has been healing for me. Likewise, it could prove to be the catharsis Justin needs to finally face his demons and walk away from drugs.

David Sheff’s (Beautiful Boy, Clean) son, Nick, a meth addict, wrote his own story, Tweak, which was very successful.

We all have a story to tell. And even though we’re not best-selling authors, our stories  have value especially to those of us walking down the painful road of substance use disorder. I hope Justin and many other substance abusers out there write their stories. More of us need to get our stories onto Amazon. The shame and stigma of this cruel disease will fade in time if we all come out of the shadows and tell our truths.

Staying Out Of The Weeds

Marilea C. RabasaLeave a comment

Before I went into recovery, I was pretty lost. On the outside, my life seemed to be rolling along well. But on the inside, I was insecure and sad. I dealt with these feelings in unhealthy ways, but didn’t feel much pressure to change them. I never missed a day of work, and I appeared to be fine. But appearances can be deceiving. Nothing had yet occurred to call my choices into question. Nothing had happened yet to push me out of my complacency.

But when my middle child fell ill with substance use disorder, after I had tried and failed over and over again to save her, I broke. The carefully manicured life I had been living was a treasured glass from my cupboard, smashed onto the kitchen floor. There were many little shards, and some big ones. I cut my fingers cleaning it up.

My recovery fellowship comes with a philosophy that teaches me many different things. And one of those things is to forgive myself and others for transgressions inevitably committed in our lives. Our common humanity dovetails at every meeting I go to, where we encourage ourselves to face our defects, let them go, and move on.

For years, I held on to mine to punish myself for my part in Annie’s disease, and most importantly, for failing to “save” her. I have learned, gratefully, that my daughter suffers from substance use disorder, as do I, and I could no more save her from it than if she’d had diabetes. I simply don’t have that power.

So I try to stay away from martyrdom and self-pity, because neither of those feelings will help Annie get well, and they hurt me a great deal. That’s where the weeds are. They muddy the waters; they keep me angry and sad. When I steer clear of them, it takes some of the sting out of losing my daughter. I can more easily open my heart to what remains in my life.

Staying in the weeds—a murky place— prevents me from changing and growing. My recovery fellowship provides the tools to accomplish those two things, with gentleness and kindness. It’s hard, hard work. But when I see positive results in real time I’m encouraged to keep at it. There’s no graduation from this school of life.

The miracle of my recovery is that my eyes can see my life through another lens now, one full of gratitude, humor and love. The fruits of my recovery rest on these three things.

Keeping Secrets

Marilea C. RabasaLeave a comment

It’s important for families to communicate well, especially where illnesses are involved. We didn’t talk much in my family, especially about the elephant in the living room, my father’s alcoholism. In those days there was so much shame and stigma, and it was swept under the rug.

Not a healthy way to deal. I always knew something was wrong but I didn’t know what. Many children are naturally egocentric, and I thought everything was my fault. I internalized all of the dysfunction and blamed myself. So that’s how I proceeded through life, feeling guilty for what was not my responsibility.

If I had been told what was going on—even later on when I could handle it— I would have gotten a healthier perspective on my family and my place in it. And I would have let go of the guilt, which wasn’t mine to carry.

Talk to your kids, no matter what. It might not change what’s going on, but it might provide a smoother landing pad for your kids later on in their lives.  “Knowledge is power.”

The Power Of Speaking

Marilea C. RabasaLeave a comment

Deborah Meier said in her book, The Power of Their Ideas, “Teaching is mostly listening, and learning is mostly telling.”

I love this because as a former teacher I used to have it turned all around. I got better, fortunately, but then I retired. Now I’m an author and what I’ve learned about myself by writing has filled three books.

I speak a lot, telling my story, mostly at recovery meetings. And when I’m not speaking to other people, I’m speaking to a piece of paper—many pieces of paper. It’s my therapy. It’s how I learn about myself.

It’s a constant practice of self-discovery, this discipline of pen to paper. I cross out, revise, change my mind, rephrase things. All this writing and rewriting helps me clarify my thoughts, my understanding of what’s real to me: what’s authentic. It’s how I learn about myself.

How I’m learning.

Continually.

It’s an ongoing process.

I find that as I keep growing and changing my writing reflects that as well. There’s nothing static about me or about my writing.

And just as the words flow out of my pen onto paper, my recovery continues to flow from my heart to those around me. It’s a real symbiosis, this relationship I have with my pen. It eases the words out of me so that I can share what I’ve learned with others.

The rare epiphany I experience is like a volcanic eruption. I had one recently, and writing and rewriting about that has taught me so much about its meaning. But mostly I’m just going with the flow of life, trying to pay attention with what’s going on with me.

So I continue to do public speaking, which is a tremendous learning experience. And the more I write—the more I speak on paper—the more I learn about who I am and who I’m becoming.

I just have to keep my heart open and listen.

Loving Them/Loving Ourselves

Marilea C. RabasaLeave a comment

“Learn to love someone even when they are unlovable.”

Substance use disorder is commonly accepted now as a brain disease. This pronouncement by the American Medical Association causes some confusion because the overuse of substances can cause such unacceptable behavior. It’s difficult to recognize, much less accept, that our loved ones aren’t always making conscious choices. They are under the control of a bewildering array of drugs which influence them. My daughter, when she is on drugs, has not even resembled the daughter I raised. She has been angry, combative, and much worse. Her moral compass has flown out the window. I have often felt the need to distance myself from her for my own protection. This is just terrible and so counterintuitive. We want to protect our children from their disastrous choices. But I paid a heavy price by putting myself in the line of her fire. I learned the hard way that I don’t have the power to save her from the life she is living. But I do have the power to save myself.

Twelve-step recovery is not for everyone; I get that. But it has worked for me. One of the reasons it has worked for me is because an important part of the step work involves self-reflection. It involves looking at myself in the mirror and getting to know myself, warts and all. It involves self-forgiveness, forgiveness of others and letting go of resentments. These are just words, but in fact, they are difficult actions to take. Some resentments that we’ve been nursing our whole lives are nearly impossible to let go of. But I have learned that they will eat away at me, like acid, if I don’t. So it’s worth the effort to let them go. As I have learned to shed much of the negativity in my life, I’m learning to like myself better and be comfortable in my own skin. It’s a slow process—I’ve been at it for twenty years!—but it has worked to help me love myself more and feel worthy of happiness.

So how has that improved relationship with myself affected my relationship with my daughter? To be honest, not much at all. She’s on her own path, one that I cannot support or enable. But what it has done is allow me to endure the distance between us without guilt or obsession. What it has done is convince me that I did the best I could with what I had to raise her, and pat myself on the back for that. The sad reality is that she got tagged with an illness that is destroying millions out there. It’s a cruel illness because it often kills our children (their minds, their spirit, their morality) before it actually kills them. Knowing now what I know about substance use disorder, I don’t beat myself up with remorse and an overinflated sense of responsibility. I will always love her unconditionally, no matter what. The door is not closed; it remains open for her to embrace recovery and come back to her family. That will never change.

In the meantime, my recovery is enabling me to bridge the gap between what I’ve lost and what’s left. I have two other children, beautiful grandchildren, a loving partner, siblings and many friends who remind me what a gift it is just to be alive. 

Jenny Jerome Churchill said it best: “Life is not always what one wants it to be. But to make the best of it as it is, is the only way of being happy.”