Walking Through Cancer/Part 7

                                  

                                                     Big Girl Pants

Early in my diary entries, after my first bone marrow biopsy, I thanked the doctors who approved administering conscious sedation to me during the procedure. I referred to the men and women who didn’t receive it,, most ungenerously, as “screaming meemies,” because presumably they couldn’t tolerate the procedure awake. Now that the clinical trial has reopened, things are moving quickly, and there wasn’t time to schedule conscious sedation this time. But Ativan was approved. So after my blood draw, I went into the procedure suite and waited for the oral sedation to take effect. It didn’t, not at all. Too nervous, I guess.

So, without blinking an eye, I turned over onto my side and let the nurse/practitioner begin her work. It helped me to have a nurse I knew come in and hold my hands, which were getting sweatier by the minute.

“I’m going to give you a few shots of lidocaine, Marilea, so you’ll feel a little pin prick.”

No big deal.

“Now I’m going to go deeper into the tissue with more lidocaine.”

Ouch, that really hurt, a deep ache.

She was coaching me like I was giving birth,

“Deep breaths, Marilea. A deep one into your nose and then exhale out of your mouth.”

“Okay, I’m going to get some liquid aspirate now. Deep breaths.”

“Another deep breath, Marilea. Okay, halfway there. One more puncture.”

I felt a very deep ache in my hip. Moaned a little, kept up the breathing. This part took a while. She was carving a small piece of bone out of my hip and placing it in a wider, hollow needle.

Then it was over. Maybe twenty minutes.

I finished dressing and Gene steadied me as we were leaving. NOW the Ativan kicked in! I slept when I got home, disturbing my sleep cycle. Definitely not worth the trouble. Even if it had put me to sleep in time, the pain would have woken me up. I’ll never elect oral sedation again, and I may forgo conscious sedation as well the next time. It’s a nuisance with scheduling and getting me ready (starvation beforehand, for one). Since I have blood cancer, I know I’ll be getting regular bone marrow biopsies, so I may as well make friends with them.

This journey has taught me many things. And one of them, as I get deeper into the weeds of treatment and all the discomforts, is that I’m tougher than I thought I was. Remember, up until now there has been no need for me to undergo these tests and procedures. But I’m at a new normal now, and more grit will be required of me. For those of you who have been following me on this journey, you know that I’ve been challenged emotionally most of my life. It usually took the form of substance use disorder, but thankfully I’m in recovery from years of that behavior. And right now, when I most need it, my recovery is serving me exceedingly well.

Hijacked

“My daughter had been hijacked by a devastating disease, and it was stealing my daughter away from herself. We couldn’t help but be swept up in the tumultuous sea of change in my beautiful daughter. She was morphing into a drug-addled stranger.

A new anxiety was building up in me and I developed insomnia. My doctor prescribed a mild sedative, Ambien, to help me get to sleep at night, but it wasn’t always effective as I tossed and turned in bed. If Gene was with me, he didn’t get enough rest either. We were both red-eyed and fatigued on many mornings, but we went to work anyway. My work ethic rubbed off on my partner.

Somehow Annie managed to graduate from George Mason University in 2004 in spite of the methamphetamine and cocaine abuse. She crashed on the sofa in my basement, on and off, oblivious to my attempts to help and support her. She was perilously hooked on those two drugs.

“Annie, what is this white stuff in a bowl on the dryer?” I asked, suspecting the worst, and furious.

“Oh, fuck off, Mom. And don’t you ever dare to touch my stuff again!” she responded with fire in her eyes. That’s right, offense is the best defense.

           Was I just a nuisance to her, or was I now the villain in her eyes? I told her to sleep elsewhere and then started going to recovery meetings for families of substance users. But it was difficult for me to grasp most of the concepts in the program. I was, at that point in my life, incapable of admitting that I was powerless over Annie’s disease. Facing that reality was counterintuitive for me. It seemed like I’d be abandoning any attempts to save my own child. After all, had I not been a poor model for her with my own deceptions regarding substance use disorder? With so much self-blame, how could I decide I was powerless now to help her?

 There was much for me to learn about substance use disorder: how to properly treat it; how to survive it.

             And in trying to survive one of a parent’s worst nightmares, my gratitude to Gene for dedicating every day to helping me get through it…what can I say?

             Boy, what a nice guy.”

© Marilea C. Rabasa and Gene Dunne, 2023. Excerpt from Gene and Toots: A Story of Love…and Recovery (Sidekick Press).

The Power of Faith

From Hope For Today, June 13:

“…What I had overlooked in Step Two was the word ‘Power.’ The day I started placing my attention on that Power instead of on insanity, I began to see miracles in my life. One such miracle was my ability to talk about my fears in Al-Anon meetings. Other miracles included taking the Twelve Steps that lead me to serenity, and engaging in the process of forgiving and healing.”

It has taken many years of hearing Step Two read at meetings for me to really hear the word ‘Power.’ Now I realize how much more awesome my Higher Power is than this disease. Instead of dwelling in fear—and listening to my worst instincts—today I am striving to pass on the miracles of recovery to my children and grandchildren. If we keep doing this then, maybe not in

my lifetime but in theirs, we will see a change in how substance use disorder is treated around the world.

Memoir Excerpt

“All my children had finished college and had spread their wings. Caroline lived in San Francisco, and Carter was about to leave for Austin to get his master’s. But Annie was still living in the area, utterly transformed by the disease of substance use disorder. I bore witness, close-up, to unbelievable changes in her character, shocking new behaviors, as I experienced a mother’s bewildering sadness and grief. I felt sometimes, like going to bed and staying there.

              Exploding into my living room a year later with a pit bull and an overflowing suitcase, her eyes were blood red as she pleaded with me.

             ‘Mom, help me. I can’t do this anymore!’

              Of course I’ll help you, my darling girl. We’ll arrange for another rehab, and I know it will work this time.

             ‘Annalise,’ I told her without giving her a choice, ‘I’m taking you to Arlington Hospital. They can help you there. Where is your car? How did you get here?’

             ‘My car was stolen. I got a ride here,’ she said, looking toward the door, wild-eyed. ‘Please get me out of here. I need help.’

             ‘Honey, it’ll be okay,’ I offered. ‘I’m sure they’ll give you something to calm you in the hospital.’

            Thank God Gene was living with me then and happened to be home.

             ‘Gene,” I was trembling, ‘you need to take Dante to the animal shelter in Alexandria. I’m sure they’ll find a home for him.’ I wasn’t sure of that at all, but it helped Annie say goodbye to her dog.

             I got in the car with her and drove the short distance away, illegally parking right at the entrance. The staff checked her in to the psych ward. As I turned to leave, Annie suddenly approached me, panicked. Of course she was afraid. She was putting herself in a situation where she would have to stop abusing drugs as long as she was there.

              ‘Annie,’ warmly offering her a hug, ‘Gene and I will visit you every day. And Dad and Paula will come over from Georgetown, too. Just try to get better. We all love and miss you so much.’

              She turned away from me and followed the nurse. The door to the psych ward slammed behind her. It only opened in one direction. She was locked in.

              And I was locked out. I still couldn’t accept the fact that Annie was a runaway train—and I couldn’t stop the wreckage. It was October, 2007, my favorite time of year. But I was blind to the autumn beauty all around me. The world appeared bleak and colorless.

              After I got home, I repeated Psalm 23 over and over again: ‘The Lord is my shepherd, I shall not want…Yea, though I walk through the valley of the shadow of death, I will fear no evil…’

            I was praying as hard as I could. But not hard enough.

           Total Wine wasn’t far from my condo. I popped in there for an economy-size bottle of Chardonnay, not even waiting for the change. The twist-off cap let me start right there in the parking lot. Once again I felt rattled and sick with worry. Alcohol was how I was finding my courage more and more in those days. The courage to watch my daughter fall into the rabbit hole of substance use disorder and be helpless to stop her.

Mirror, mirror…I was following her down that hole.

By the time Gene returned from taking Annie’s dog to the shelter, I’d finished about half of the bottle, was terribly drunk, dizzy, and sprawled on the sofa, wailing out loud.

‘I’ll never do this again, make me promise! This is the last time!’

Gene just held my hand.”

© Marilea C. Rabasa and Gene Dunne, 2023. Excerpt from Gene and Toots: A Story of Love…and Recovery (Sidekick Press).

Baby Steps Lead To Bigger Ones

“First Step Prayer:

Dear Lord,

I admit that I am powerless over my addict.

I admit that my life is unmanageable

When I try to control him/her.

Help me this day to understand the true meaning of powerlessness.

Remove from me all denial of my loved one’s addiction.”

The first step is probably the most important one in assuring our recovery from the effects of another’s substance use disorder.  And it’s because I refused to take it that it took me so long to start to recover. I simply wouldn’t accept my powerlessness over my daughter’s disease. I felt as though I would be dropping the ball and appearing not to care about her. I felt that I had to do everything in my power to save her. “Power,” I realized later on, that I didn’t have.

So, deep pockets enabled me to put her through four rehabs. Deep pockets also had me paying her rent, paying off her loans, paying back the creditors she got into trouble with. All my “help” simply gave her more money for drugs. In short, deep pockets can be dangerous if used for the wrong things. She might have learned something from the consequences of her actions if I hadn’t kept getting in the way.

So yes, my life had become unmanageable. I love my daughter very much. And I kept making things easy for her. But we can enable our children to death. Now I’ve let go of all my attempts to control her and her disease.

And I feel as though the weight of the world has been lifted from my shoulders.

Resistance Training

From In All Our Affairs, Making Crises Work For You, Surrender:

“‘Let go and Let God.’ It sounds so simple. But when our circumstances or the circumstances of those we love weigh heavily on our minds, we may have no idea how to do it. Some of us struggle with the very idea of a Higher Power. Others begin to question long and deeply held beliefs, especially in stressful times…

Many of us review the same scenario again and again, looking for that elusive answer that will solve everything, obsessively wracking our brains for something that we could do differently or should have done differently in the past…As long as there is a chance of figuring out a solution, we reason, we should keep trying…We may secretly feel that this problem is too important to trust to God, as if we had the power to prevent God’s will from unfolding by the mere exercise of our resistance. We fear that if we surrender, anything could happen—

Actually, anything could happen whether we let go or not. It is an illusion that as long as we cling to the situation we have some control…Surrender means accepting our powerlessness to change many of the realities in our lives…It means trusting instead in a Power greater than ourselves. Faith has been likened to being in a dark tunnel and seeing no glimmer of light but still crawling forward as if we did.

Though our circumstances may seem dark indeed, when we turn to a Higher Power rather than to our own stubborn wills we have already begun to move toward the light.”

“Moving toward the light…” I really love the sound of those words. What could be darker than watching my daughter self-destruct over the course of twenty-two years? How have I learned to “dance in the rain,” even as she has continued to slip away?

My resistance training at the gym has shown me that pain comes from putting resistance on the force exerted, and that has served me in strengthening my body. But my spiritual life demands just the opposite. My strong will and determination to save my daughter from substance use disorder was instinctive; it would be counterintuitive NOT to step in and interfere in my child’s self-destruction.

However, once I became educated about the nature of addiction as a brain disease, I realized that other than offering my love and emotional support, there was very little I could do. I did send her to four rehabs, which bought her some time. But my efforts were not enough. At what point do we need to make our adult children responsible for their own recovery from this cunning disease?

Deal From Strength

From The Forum, October, 2014:

“Before I came to Al-Anon, when I was figuring out if I was okay, I had a mental checklist: is my daughter okay, is my son okay, and is my husband okay? If I could answer yes to all of those, then I knew I was okay. When I could no longer deny that my teenage son had a big problem with alcohol and drugs, I was no longer able to feel okay, because he wasn’t okay. I had it backwards.

In Al-Anon, I’m learning how to be okay without first checking in with my loved ones to see if they are okay, If they aren’t, maybe I can say or do something helpful; maybe not. I will still be okay. The action I take is much more likely to be effective if I am acting or speaking from a place of serenity. And with serenity I can begin to let go of the outcome, knowing I have done all I can and that I am powerless over the rest.”

All I can add to these wise words is another saying I’ve picked up along the way:

“Deal From Strength.”

 So often in life our actions, and more often our reactions, are born out of fear. When my daughter robbed me, I ran around like a scared rabbit, listening to her denials. If I had been stronger, I might have taught her a valuable lesson about logical consequences. This is an example of my getting in her way. My fear governed that poor decision. Now, through the wisdom I have learned in the rooms, I do things differently. I can let go of outcomes and be at peace with myself.

Sometimes dealing from strength means doing nothing for the moment, taking a deep breath, and trusting in God’s will.

Rising Above Fear

From The Forum, November, 2022:

“Connecting with My Spirituality”

“Amid chaos, when I most need to find relief and serenity, it can be difficult to slow down and use the tools of prayer and meditation. Even when I can’t still my mind, meditation can help me steer it in the right direction…Meditation helps me to be mindful instead of mindless in all aspects of my life…Mindfulness isn’t limited to techniques like sitting cross-legged, reciting a mantra or focusing on my breathing. It’s about noticing my default mode and realizing that I have choices. It’s a slowing down that grounds me and gives me a sense of opening and expanding, of pushing back against the walls and gaining space. It’s the opposite of pressure and fear.”

My default mode: fear and panic. Slowing down and recognizing the source of my fear helps me get a handle on it. Then mindfulness: I draw on my program and examine my choices about handling that fear. What can I do? Do I have any control over the source of it?

My 44-year-old daughter is in the clutches of substance use disorder. She has been in and out of recovery for twenty-two years. She is not in recovery now. That might make me fearful without my recovery program.  What can I do about her? She’s in charge of her own life. I wish I had the power to change it. I don’t. Believe me, I’ve tried. After years of managing my fear and anxiety through enmeshment, helicoptering, and people-pleasing, I’ve learned that those means are unhealthy. They give me the illusion of being close to her and “helping,”  which has always backfired. It just kept her learning from her mistakes and growing. So now I have let go. I know that I can only love her. And staying in that positive space removes my fear and makes my life more enjoyable.

Fear has the potential to bury me. Loving sets me free.

“Recovering From Fear”

From The Forum, November, 2022:

“When I came into Al-Anon at the suggestion of a friend, my life was unmanageable in so many ways. I was unaware that living with alcoholism was involved in my broken relationships, divorce(s), several addictions, inability to be honest with myself, people pleasing, and other things I had not uncovered yet, either because of denial of lack of discovery.”

“lack of discovery…” Bingo! I feel as though I’d been living in a fog for most of my early life, only I didn’t know it. I didn’t know anything about the family disease that (I now know) was interfering with my well-being.

Where was this article—this enlightenment—when I needed it? As a younger woman I blamed myself for everything that was wrong in my life. I understood nothing about the complicated disease of substance use disorder. But twenty years of work in Al-Anon have opened my eyes. The fog has lifted and now I see more clearly. I understand why I internalized so much of the dysfunction that was happening in my family and carried the guilt myself from which there was no relief.

Not until I entered this compassionate fellowship. It is in these rooms that I found forgiveness for my parents and myself, along with critical tools to continue the healing work I was doing. The 12-Steps and the slogans, when practiced, have helped me navigate through my life. And life, itself, is a mixed bag. I’ve had joys, but also incredible sorrows. Using the teaching of Al-Anon as a guide, I’ve learned to be grateful for my blessings. And I’ve learned to accept my sorrows with grace without being destroyed by them. Learning how to put things into healthier perspective has been a gift of the program.

I have been given hope for a better life, and I’ll always be grateful that I opened my mind to some good advice: “Go to a meeting, Marilea. It might be the answer for you.”

It was. And my fears have been replaced by the certainty that all will be well, in God’s plan.

Mirrors

From Each Day A New Beginning, February 11:

 “’It’s odd that you can get so anesthetized by your own pain or your own problem that you don’t quite fully share the hell of someone close to you.’ ~Lady Bird Johnson

Preoccupation with self can be the bane of our existence. It prevents all but the narrowest perspective on any problem. It cuts off any guidance…that may be offered through a friend…When we open our minds to fresh input from others, insights emerge. We need the messages others are trying to give us.”

 An end to my isolation. Opening my mind and heart to what others offer me.

For many years, I closed myself off from these offerings. I was busy with my life, self-sufficient…but unhappy. I was pretty bewildered about that—yet resigned to it.

Then—for the worst possible reason—I joined a recovery program that provided tools to help me climb out of my self-imposed misery. There are many new attitudes that I have adopted over time. But the most critical, I think, has been taking the risk to open myself to others and learn about myself using others’ perspectives to add balance to my own.

I’m not afraid of mirrors anymore.

I’ve had to let go of years of denial and preconceived notions about myself. I’ve had to learn how to be honest. And in doing that, I have discovered my own humanity. I am not unique, but part of a fellowship of equals who share a common bond.

No longer alone or lonely, I’m learning how to accept life on life’s terms…and be happy.