“Enough is enough when the hurt inflicted is greater than the lesson learned.”
I felt that, because I was the mother of an addicted child, I just had to put up with things. But underneath that martyred attitude was a shaky self-esteem that whispered to me, “This is what you deserve. It’s your fault.”
When I recognized the truth of that, I became willing to take up the yoke and start working on myself. After many years of working the steps and arriving at a place of self-love, I no longer hear those voices. I’ve gotten my life back, and concentrate on what I can control in my life.
I give thanks, multitudes of thanks, for what I’ve been given. I’m finally able to celebrate myself. And I’m grateful to my daughter for getting me into recovery.
God Bless Us, Mamas. We do the best we can! Everyone reading this: buy yourself a rose today!
I determined to continue being a squeaky wheel. The secretary I called daily told me to pay attention, instead, to my garden. Yup, she really said that. Then she stopped answering my calls. So I messaged Dr. Malakoti and asked what the two-month delay since my last PET scan was about. I told her I was getting nervous because I’ve had symptoms for eight months without a diagnosis. A week later I got a call from the surgical suite at University of Washington.
“Hi Marilea. I’m calling from Dr. Kim’s office at UW. He wants to see you right away, tomorrow if possible at 1:00 to schedule your surgery. Can you make it?”
“Can I make it? With bells on. I’ll be there, and thank you!”
So Gene and I raced down to Seattle to meet my surgeon. He was very nice, and when I gave him the timeline of my symptoms, he looked alarmed.
“How soon can you get me in for surgery?”
“By Friday or next week at the latest. I’ll meet with my team and put you in at the head of the line. This qualifies as an emergency and we want to see what’s going on right away.”
“Oh, thank goodness! And how soon will it take for pathology to get back to you?”
“Three to five days. My nurse will come in to talk about preop procedures for you, and my secretary will call you to give you a surgical date.
And just like that I’m all set up for my second excisional biopsy with a promised diagnosis within a week thereafter. I’ve been living in limbo for so long that I’m not sure how I feel. With a definitive diagnosis (hopefully) comes the acceptance I crow so loudly about. We’ll see if I can manage it.
The biopsy went well. And I behaved myself: no activity for two weeks.
Which I did. Just in time to get the news that I do, in fact, have lymphoma.
I’ve kind of known this all along. Arrogant? No, more like intuitive. My symptoms are glaring—and now add fatigue to the mix—so I’ve always known I was very sick with something. But the night sweats aren’t “exotic” anymore. They’re just annoying, and I would like them to end. I’m glad to have a diagnosis so that some form of treatment can begin.
This story in nine parts has been my attempt to articulate my feelings, a healthy practice. My playing “Dr. Google” may or may not have been helpful. I have found no one in the medical community, including Dr. Julia, to discuss my case frankly with me. So all my research has been an attempt to get out in front of it all, prepare myself for my reality, and feel somewhat in control of a process that isn’t really mine to control. As a friend of mine told me,
“We are of an age when the fates will play their cards.”
“I’m so grateful I found a way out of sadness, a way to take care of myself each day, and a relationship with the God of my understanding, who will never abandon me. The pain I’ve felt in the past is equal to the measure of joy I feel now.”
That’s quite a mouthful. Whoever wrote those words in “The Forum” is saying that somewhere between despair and happiness she or he did some work, found some answers. For me, anyway, I entered into a state of grace. I quite deliberately let go of my pain, which served no further purpose in my life. The lessons it taught me have been learned. I’ve put my sadness in a back drawer—and replaced it with positive thoughts that keep me motivated to reclaim my life, my remaining loved ones, and keep my heart ticking.
“…What I had overlooked in Step Two was the word ‘Power.’ The day I started placing my attention on that Power instead of on insanity, I began to see miracles in my life. One such miracle was my ability to talk about my fears in Al-Anon meetings. Other miracles included taking the Twelve Steps that lead me to serenity, and engaging in the process of forgiving and healing.”
It has taken many years of hearing Step Two read at meetings for me to really hear the word ‘Power.’ Now I realize how much more awesome my Higher Power is than this disease. Instead of dwelling in fear—and listening to my worst instincts—today I am striving to pass on the miracles of recovery to my children and grandchildren. If we keep doing this then, maybe not in
my lifetime but in theirs, we will see a change in how substance use disorder is treated around the world.
When my ego is involved and there’s a calculated risk, I’m going to be gutsy, not courageous. It takes guts to ski a steep trail; I alone will be rewarded. Courage is different. There is always a parenthesis of fear in Courage; the risk becomes minor. This parenthesis remains a void of fear until it is filled by God. There is no ego in a courageous act. Courage can ask for help. It is often something done for someone else, or it may be something I am not attracted to doing at all. I may lose by doing it. The courageous act is often the unpopular choice, to do or not to do. The results are seldom only mine. It requires more of me than I want to think I can do, alone. After it is finished, gratitude to someone or something is usually in order. Courage requires a moral strength not of myself. This strength is given by faith.”
EGO—Easing God Out—is my enemy in many ways. It makes me willful and arrogant. It’s the great separator—of me from people, of me from God. When I let God back in again, my life and my relationships seem to work better. And God has always given me the courage to do what is difficult in relation to my daughter. My faith in Him has given me the strength to do what I believe is right, regardless of the consequences. I believe things are unfolding as they are meant to. When I surrender to this belief, I am at peace.
Many people are not strong enough to battle the terrible force of substance use disorder on their own. Application of the Twelve Steps had proven successful over and over again since they were put together by a couple of alcoholics and their friends back in the late 1930’s. Substance abusers need help; some say they need spiritual help. Our society is full of naysayers—skeptics who eschew these programs that are found in every major city across the country, and in big cities, in many of the churches, meeting three or four times a day. There’s a reason for the popularity of Twelve-Step programs: they work for many people. So I promised myself I would try harder now. My daughter was worth it. My daughter was worth it?
There is no one place on this journey to pinpoint where I discovered that I was worth it. I knew what a flawed human being I was. I was aware of my mistakes along the way—big ones and little ones.
But as I was starting to embrace the principles found in these Twelve Steps I was reacquainting myself over and over again with my own humanity and feeling my self-worth solidify with roots into the earth. None of this growth in me would have occurred if my daughter’s illness hadn’t pushed me onto this path. And I would always—still—reckon with the survivor guilt that has challenged my right to be happy while my daughter still struggles with this cruel disease.
There are many who view Twelve-Step groups as cultish and unattractive. There’s such a powerful stigma in our society against substance use disorder in all its forms that, I suppose, families of substance abusers suffer from guilt by association. Early on in my recovery my sister once said that it must be nice to have “those people” to talk to. But as she’s watched me grow and change these past few years I think she’s developed a healthy respect for the Program.
To this day, though, she has never discussed with me the dark side of our father, the alcoholic. Maybe she never saw his dark side, as I did. To her, he was the best father in the world, and I have no need to invade that sacred place where she holds him in her heart. In fact, I agree with her. He was a very loving man who passed on many gifts to his children and grandchildren. Yes, he was sick, and he died too young because of it. But just as I have forgiven my mother for any ways she may have hurt me so have I lovingly accepted my father’s illness. And in learning to forgive my parents and others who have wounded me in my life, it has become easier for me to forgive myself for my own shortcomings and the part they played in hurting my own children.
I, being a substance abuser, a daughter of one and a parent of one, have found myself quite at home among these seekers of peace and serenity. I’ve been in the right place for twenty-three years now, and I cannot begin to tell you the gratitude I feel for the wisdom in this simple program that has helped me to look forward to the sun coming up every day—and to embrace my life in its entirety.
“I had a habit of doing the same thing over and over again and expecting different results. After discussing the matter with a friend, I was given an exercise to practice. When someone says something to me and I have a strong reaction—wanting to cry, wanting to rage, thinking I am inferior—I stop and visualize two doors. One is marked “Same old, same old,” or “My will.” The other is marked “New and different,” or “God’s will.” On seeing these two doors, I imagine opening mine and viewing what I would normally say or do in this situation. Then I close my door and open God’s. By the time I’ve done this, I’ve given myself several moments between the initial comment and my impulsive reaction. This gives me time to practice the slogan T.H.I.N.K. and to choose a healthier response. I’ve not had a single regret-filled incident since I began to practice this self-restraint. Ironically, most times what’s behind God’s door is absolutely nothing. What a message! Could this possibly mean that other people’s behavior belongs to them and I don’t have to make it mine by reacting to it?”
Before I went into recovery and learned how to view myself and my world differently, I was on automatic pilot. And the worst example of that was my extreme reactiveness to just about anything. Something like a look from another person could really get me going! But to make myself vulnerable to other people’s thoughts or opinions about me put me at a terrible disadvantage. I continually got lost, too often dependent in other people’s ideas and behaviors. Twelve-step recovery has taught me how to sort out who I am as I interface with the rest of the world. Acting with more integrity than before, I can react less and be more proactive.
Which is a long way of saying that I’m grateful not to be on automatic pilot anymore. Grateful to recognize that I have choices now. And I try to make good ones.
Here’s a good book to consider buying: Discovering Choices, Al-Anon Family Group
I love this acronym because it shows how emotions can collide with rational thinking. It also shows that even when we are being rational, we sometimes say the wrong thing. As a writer, I’m aware of the power of words—how they can persuade, or repel, how they can win friends, or lose them. I’ve done them all! When I get too emotional, I’m sure to say the wrong thing. Experience has taught me to use this acronym to weigh carefully what comes out of my mouth. To ask myself if what I say is necessary, or am I just spouting off, releasing steam like Old Faithful in Yellowstone? Am I being honest, or are my words brutal and tactless? Do I care how my words might affect the other person? Am I so emotional, in the moment, that my words might appear unintelligible? And most of all, do my words demonstrate kindness towards the other person?
Of all those terms, kindness for me is the most far-reaching and important. No matter what happens to us in our lives, no matter how deeply we are humbled by our circumstances and shortcomings, if we can remain kind in the face of everything, then that says a lot about our character.
from Sharing Experience, Strength and Hope, June 16:
“I remember feeling my anger and resentment lessen at my first meeting when I learned that addiction is a disease, like cancer or diabetes. I didn’t cause it, I can’t control it and I can’t cure it.
Today I am grateful that I am married to an addict because I have been given the opportunity to explore my spiritual nature and move out of my comfort zones. I have taken a good look at who I am, what I want and where I’m going. I am facing my past, my faults and my fears. I am becoming a better person, a happier person, and a more serene person. I am slowly but surely learning not to suppress my emotions and fears, but to release them and grow.”
‘No longer forward nor behind I look in hope or fear. But, grateful, take the good I find, the best of now and here.’ John Greenleaf Whittier
Just for today, I will pay attention to my blessings. I have so much to be grateful for, and I guard against complacency. It can all be snatched away in a heartbeat, so I take nothing for granted. This is a good way to live, savoring every good moment.
At that last Zoom meeting with Dr. Malakoti, I complained that in all these months of tests and speculation I haven’t yet had a physical examination. I guess I got through to her because the scheduler at Fred Hutch called me the next day and made an appointment for just that, before we would decide on another lymph node biopsy. That made wonderful sense to me, and all of a sudden I felt more secure, like we weren’t just throwing darts in the air. An exam would tell Dr. Malakoti a great deal about the state of my health. And it also taught me the value of advocating for myself.
So Gene and I drove down to Fred Hutch for a noon appointment and anxiously waited to see my doctor. She felt around my body for swollen lymph nodes and measured the ones she felt in my groin on both sides.
Dr. Malakoti confirmed, “Yes, we will need to get you into surgery for this biopsy as soon as possible.”
“How soon?” I asked.
“Probably within twenty-four to forty-eight hours,” she assured me.
I waited, not too patiently, for a call from the scheduler. Nothing. I called them twice a day. Nothing. A week of waiting. Nothing.
So I decided to go down to Seattle because my son needed me to babysit for his kids. His anniversary trip to Belize with his wife was more important to me than waiting for a phone call that wasn’t coming. Life goes on, doesn’t it?
Dr. Malakoti did take the time to message me about the surgeons’ decision to biopsy the right node instead of the left. And she emphasized that they haven’t found any cancer in my tests “at least, not at this time.”
Those are ominous words. What do you mean, “not at this time…?” Well, I’ve made it to age 76 without any cancer or its symptoms. Now I have symptoms. Now they are subjecting me to invasive tests. Now they tell me, “You don’t have cancer at this time.” So what does that mean? That cancer is a slow-moving train that may or may not collide with me someday? Everyone in the world can say that, can’t they? From the day they are born. How am I any different from other people? I have some hallmark symptoms of blood cancer. So they are treating me seriously.
I guess, since no one in the medical community will talk straight with me, I will have to wait for a definitive sighting of lymphoma, or lack of it, in my second biopsy.
I asked Dr. Malakoti directly when she examined me: “What are you looking for? What do you suspect? Could I have lymphoma?”
She moved around the room to get something, but did not answer my question. Maybe any form of speculation is strictly forbidden at this point. Maybe they will level with me when they have an answer.
So I return to patience and acceptance of what I cannot change.
