spirituality

Walking Through Cancer/Part 18

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                                          Testing My Mettle…Yet Again

Last spring when I had raging carpal tunnel syndrome in my hands AND a viral mouth infection so severe I couldn’t eat anything but pablum, I whined that “it never rains, it pours.” Well, those two maladies were a walk in the park compared to falling down the stairs and breaking my humerus three days before my first chemotherapy infusion.

“God,” I said looking up as though that were where He lived, “You are really testing me. Geez, isn’t t-cell lymphoma bad enough without having to cope one-handed with my arm in a sling?”

It’s a good thing I couldn’t see Him because I knew he was smiling, sure that I would meet this challenge just fine. And I would have slugged him, I was so mad.

At myself, of course. I talk about remaining teachable and I think THIS time my self-will has wrought a bad enough consequence to make me stop in my tracks. How did this happen? I failed to turn the night light on, was nearly finished barreling down fourteen steps in slippery socks, missing the last one, and plummeted onto my left side at the base of the stairwell.

My first thought: I will not be defeated by this. I got up and was grateful I could walk without pain. More gratitude: it was my left side and not the dominant right. I went to my phone and called 911.

Camano Island Fire and Rescue was there right away and whisked me off to Skagit Regional Hospital in Mt. Vernon. X-rays were taken, and I waited in the outer area for my friend to come and take me home. Oh, did I mention that Gene had just that evening flown to San Francisco for the memorial of a friend? Timing…

I was quite alone in my house, but not for long. The front door was constantly revolving all weekend with friends coming over to teach me how to wear a sling, cut up vegetables, open bottles for me, perform a myriad of tasks reserved for two-handed people. I’m so grateful for them.

My son took me to my first infusion the following Monday. He held his tongue, but I knew he was furious that I could allow such a disaster to happen at the start of my chemotherapy. When Gene flew back the next day, more dismay and head-shaking that I could have been so careless.

So there you have it. This occurred on October 17, just eight weeks ago. It was fractured badly and the ice cream is nearly off the cone. Still quite painful, it’s not going to heal on its own. So I saw a shoulder surgeon this week and he’ll schedule surgery for as soon as possible, when treatment is over.

The sooner the better, so I can get through rehabilitation therapy and hopefully get back to paddling my kayak this summer. Am I too ambitious? Nah.

And I’m nothing if not determined…

Walking Through Cancer/Part 17 conclusion

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A Changed Life

It’s a fortunate person who has evolved enough to realize that he needs to change in order to live his best life. I am one of those fortunate adults.

Spending many weekends down in Seattle at my son’s house to bond with my young grandchildren, I was regularly drinking in his basement where I’d been sleeping. I was not ready to work on myself and give up my thirty-year habit. Then one day he and his wife took the time to confront me about it.

We sat down together at their dining room table, and he minced no words:

“Mom, we know what you’re doing in the basement. All our vodka bottles are empty.”

Immediate shock, humiliation, and the realization that I had not been fooling them all these years. If this intervention had happened years ago, I’m sure that I would have responded like this:

Full of indignation, I would have shouted, “How dare you speak to me like this? You owe everything you are, your education, your trips, the love and support I have given you since the day you were born, primarily to me!”

But on that day, April 25, 2017, I responded differently. I said very little, just that I was so sorry that I’d been behaving so recklessly for so many years. They never asked me to join AA. That was my decision. And from that day, I’ve never thought about drinking alcohol. At last, this student was ready for the teacher. I’m so grateful that I’ve remained teachable.

Since then, my life has improved exponentially. I continue to be devoted to my Al-Anon groups. But, a “double winner” I am called, I also attend AA meetings even more frequently. Some of the meetings are just for women, and the other ones I attend with Gene. This awakening on my part has brought Gene and I closer together. He had endured my drinking in all our years together, but knew better than to pressure me to quit. That desire had to be born deep inside of me, and not to please him, or my son, or anyone else. I had to believe that I was worth the effort to stop drinking.

My relationships have improved since I’ve given up alcohol. The twelve steps are essentially tools to help us realize our potential as human beings. The ‘God steps’ I spoke of earlier are a lesson in humility, where I let go of my arrogance enough to admit my powerlessness over people, places and things. The next steps involve looking at ourselves honestly and becoming aware of our defects. This exercise is followed by sincerely making amends to people we have wronged.

Finally, “having had a spiritual awakening as a result of these steps, we tried to carry this message to alcoholics, and to practice these principles in all our affairs.”

This is the transformation I write about in all three memoirs, and it’s a glorious one, indeed.

Walking Through Cancer/Part 17 continued

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                                                         Healing

When I was seeing a counselor at work in Virginia, she suggested I try a 12-Step group called Al-Anon.

“Oh no, that’s not for me,” I responded, convinced that I had all the answers to Annie’s problem. Yet I was desperate for help, and was willing to try anything, so I began attending a regular Saturday morning meeting. But I was essentially paying lip service to a program I was too arrogant to believe in. I felt I had all the answers and was unable to accept her substance use disorder as a disease I had no control over.

The first three steps of all the 12-Step programs are the “God Steps.” We admit we are powerless over whatever it is that we are trying to free ourselves from; in my case, trying to control my daughter. But I needed to learn to let go of Annie. “Let go or be dragged,” they say in Al-Anon.

After six years of attending meetings, and still unable to save her with the only kind of love I could offer, I suffered the clinical depression I spoke of in the previous segment. That’s when Gene and I left Virginia and moved to New Mexico. We enjoyed a decade of living in “the land of enchantment.” But Annie was still floundering, and I stepped up my drinking. I couldn’t bear the pain of losing her.

My son and his wife had moved to Seattle for work, and they started having children.

“Mom, please think about moving up here with us so you can be closer to the children and watch them grow up.”

This was a no-brainer for me and Gene. We had spent the early years of our lives together paddling canoes all over the country, so being near water to continue that pursuit would complete us. It was the one thing that was missing in the desert of New Mexico.

I quickly sold the condo I owned in Virginia and bought a nice home on Camano Island, an hour north of Seattle. Gene wasn’t quite ready to let go of his orchard and the sunshine of New Mexico, so we went back and forth between our two homes for four years. But we eventually got tired of all the fence-sitting and made a decision to sell our little pueblo house to live full-time on Camano Island.

Life was good. I had begun publishing award-winning memoirs while still living in New Mexico, and was about to publish my second one in 2020. Having joined Story Circle Network in 2013, I used their publications to write  a number of short pieces and see them in print. Story Circle Network is an outstanding and versatile organization founded by Susan Wittig Albert back in the 1990’s, specifically as a venue to encourage women to find their voices and write.

Between that and publishing my memoirs, the catharsis I needed to open my eyes and begin the healing process had begun.

Spiritual Levitation

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“The serenity I am offered in Al-Anon is not an escape from life. Rather it is the power to find peacefulness within life.

Al-Anon does not promise me freedom from pain, sorrow, or difficult situations. It does, however, give me the opportunity to learn from others how to develop the necessary skills for maintaining peace of mind, even when life seems most unbearable…

Serenity is not about the end of pain. It’s about my ability to flourish peacefully no matter what life brings my way.”

In the movie, “The Shack,” Mac has a dream and in it he meets God. Mac had recently lost his young daughter, and in his anger and bitterness he lashed out at God. Who else to blame? God (a woman in the movie) came right back at Mac with Her own defense: She didn’t orchestrate all the misery on earth: Ukraine, The Holocaust, children starving in Nigeria. “Don’t blame me for all that,” She said.” My purpose is to help you rise above it.”

Wow, those are powerful words, and they remind me that I am not alone in my struggle, that God (or any form of a Higher Power) wants to partner with me if I accept him.

Al-Anon has the same purpose in my life. God doesn’t have the power to return my daughter to me. But if I continue my daily practice of gratitude, accept what I don’t have the ability to change, and have faith that God’s plan is unfolding for a greater good than I may ever see, I can live peacefully and even joyfully, savoring all the goodness that is in my life. It’s my choice.

A Time To Give Thanks

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Dear Friends,

It’s that time of year again—that challenging time of year—when holidays and all they symbolize beckon us into that place of remembrance. This is the time of year when I really step up my program.  A spirit of gratitude has been the one tool that has always worked to elevate me from my despair around my daughter. So I hope that we can bring that spirit into our lives during this season of thanksgiving and count our blessings. We’ve all lost loved ones one way or another to the cruel disease of substance use disorder. But the sun still comes up every day and sets every night. Life goes on—and we with it. Let’s keep hope alive and live our lives as best we can. Blessings to you all!

Walking Through Cancer/Part 14

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                             Pink Clouds Don’t Last Forever

It would be so nice if they did.

I’ve had two chemo infusions, and the first one was such a breeze that I wondered what they put in the cocktail. No side effects, and I marveled at how easy chemotherapy was now. I felt wonderful afterwards, and the best part was that the fatigue in my legs was gone. I have energy that I haven’t felt in many months, and it’s been great to experience, especially when I remember how active I used to be with Gene. To have that taken away was hard.

So with my infusion last Tuesday, I expected the pink cloud to last. But it’s gotten a little rougher. The nausea has been really hard, so I keep popping nausea pills which have their own side effects. Heck, no one ever died of nausea. I’ll get through it, but I suspect it might get worse before it gets better. Chemo treatments end on February 3, and then I hope my hair starts to grow back quickly. Oh, I can dream…

All this is a small price to pay for possible remission from my lymphoma for ten more years. The Fred Hutch Cancer Center where I go to see Dr. Christina Poh is one of the best cancer centers in the country, right up there with Sloan-Kettering in New York and Anderson in Texas. And it’s right in my back yard. I’m so grateful to all the doctors and nurses there. They have pulled out all the stops and are exceptionally thorough. And no matter what happens down the road, I know that I’m getting the best care available to me. No doubts, a very secure feeling.

On the home front, my life is so fulfilling. There’s nothing like getting sick to inspire your friends and family to show how much they value you. We humans can be so lazy in that regard. I hope I never get that lazy again, and continue to pay it forward. Next Saturday Gene and I are flying to Anaheim, CA for a week with my kids and grandkids: Disneyland, Santa Monica, and LA! I’ve never been there and am so excited. We’ll go to a restaurant for Thanksgiving dinner, and it will be divine to not have to do all that cooking for once!

Then we fly back and I have two more infusions before Christmas. Gene will step up for me and do all the heavy lifting to prepare the house for Christmas: get the tree and decorate it, make dinner for us all while I hide behind a mask the whole time.

I used to dread the holidays because they were so sad for me as a child. But I’m not a child anymore. Now I see them as yet another opportunity to celebrate my life with my family in the present moment. And oh, what joy we give each other now. If we look for joy, we will find it.

War And Peace

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“They sicken of the calm, who knew the storm.” ~Dorothy Parker

Do I see myself here? Somewhat, if I’m honest, as cynical as that quote is. Maybe in the beginning I was addicted to the drama of my daughter’s substance abuse disorder. That—and all the martyrdom I subjected myself to. But this did not bring me happiness. There are a number of ways, I have learned, to stay involved with an addicted child—ways that might have helped us both navigate this illness better. But for a long time I was stuck and didn’t know how to free myself of the downward spiral.

Over time, my obsession broke me down and wore me out. I do enjoy the peace in my life now, though I still experience some PTSD. So many years, it seems, of struggling to help her, and then for both our sakes, letting go of the struggle to save her. Addressing once and for all my own substance use—so that my presence could benefit my other loved ones. Don’t think for a moment that I don’t feel the pain of losing my girl. I do. The trauma of losing a child, to whatever illness, never goes away. But, in my experience, it isn’t so heavy to carry. It feels lighter now. Hang in there, Moms. Many things are resolved with better education and the passage of time. Keep loving yourselves and the world around you. Love is the great healer of all things!

“Loving, like prayer, is a power as well as a process. It’s curative. It is creative.” ~Zona Gale

The Healing Power Of Humor

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From Hope for Today, April 6:

“…Today my sense of humor is a natural reflection of who I am. I experience the world through smiles and laughter rather than through bitter smirks. I share joy with others rather than seek company for my misery. I help others heal rather than attack them. I allow my sense of humor to unfold naturally, just the way it was meant, and I watch the wonderful results as my Higher Power works through me toward a higher good.”

Finding my sense of humor has been a reflection of how I’ve changed in recovery. I’ve worked through my grief around my daughter and continue to do so every day. But the darkness has receded. Somehow it’s not as heavy to carry as it used to be. It seems lighter. I’ve gained perspective from years of reading and writing, and listening to other peoples’ stories. Being able to laugh, and cease to take myself too seriously, has eased my journey through this frightening tunnel. I can see the light at the end of it.

At times I wondered if I would ever laugh again, but my Higher Power wanted me not only to survive but to do so joyfully. There are many other people in my world, and my recovery spills over onto them in countless ways.

Cultivating a healthy sense of humor keeps me right-sized; I stay small and HP stays big. Then I don’t get in my own way so much!

Walking Through Cancer/Part 11

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                                    My Blood Tells the Whole Story

I’m so glad that I had a chemo port surgically implanted in my right shoulder. It’s much simpler for everything: blood draws, transfusions, and chemo infusions. Most of the time I forget it’s even there: painless, just a little bump under my skin. Very convenient.

This week, my blood work showed great improvement in my numbers: white blood count is normal for the first time in a year; but still low red count and anemia. Yet I feel so much better after only one chemo infusion last week. No more fatigue in my legs and just a generally improved sense of wellness. Except for the pain in my left arm…

I asked my doctor on Monday to level with me: did they start with a low dose of chemo and will gradually increase it with five more infusions? She said no, they plan on giving me the same dosage every time. So I guess we’ll see. It’s out of my hands anyway. Just lean into it and be grateful that there are no side effects so far. Same story with the clinical trial, a randomized blind study. Maybe I’m getting a placebo. Time will tell.

Fred Hutch Cancer Alliance has offered me up to $2100 for participating in this clinical trial. I’m pleased about that. And if the trips down to the Hutch are more than twice a week, they offer cheap housing on their campus to the cancer patients. I’m getting a lot of support. Not to mention all the rides my friends are offering to get me to the Hutch for treatments. I am surrounded by love and support. No more room in the refrigerator for all the food people are bringing. It’s hard to cook with my arm in a sling!

I feel blessed as I walk through this journey. I’ve attempted to be proactive with all the needs that go along with chemotherapy: anti-nausea pills, which I haven’t needed at all. And since my doctor assured me that I would lose my hair, I have a box full of scarves and bandanas which I can’t put on with one hand! I think God is playing a joke on me by making this so difficult. But so far, no need for head covering: I still have my hair. Still, it’s early in treatment…

During my first infusion, I realized I forgot to put on my chemo cap (a desperate attempt to keep my hair). By then, though, it wasn’t even cold, so I said to myself, the hell with it. I don’t even care anymore. Women are vain creatures, yes we are, and I certainly am. But every day that passes, my vanity seems to be flying out the window. It’s all so superficial anyway. My spiritual health is what matters.

So this is where I am now, growing inwardly, and happy to see on MSNBC that bald ladies seem to be in fashion. A new trend!

Walking Through Cancer/Part 10

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One Tough Old Bird

Nearly three years ago, I tripped on a towel in our bathroom and fell, whacking my head against the porcelain tub. I broke six ribs, had a pneumothorax, and a teardrop fracture in my neck.

It was my fault, moving too fast in an unlit room, I made a promise to myself: I can never fall again. Period. Well, “Promises are like piecrusts…” Is that how it goes?

Five days before my first chemo infusion, I made the same mistake. I had a fall that resulted in a significant fracture of my humorous (upper arm). OMG, I can’t believe my timing! I’ve started out in a sling and the orthopedist saw me yesterday. Because of the cancer treatments, we’ve elected to avoid surgery for now and let it heal in the sling for six to eight weeks.

“Marilea, the human body is a remarkable machine. It will heal itself if we are patient and let it. If you use the sling for the next two months, slow down, and use the time to rest, it will eventually heal itself. You will need to do regular exercises and maybe work with a therapist regularly, but I think we can avoid surgery, which is problematic at your age, not to mention your cancer treatments.”

“Thanks, Doc. I’ll learn to be patient and let my arm heal on its own. See you next week for a checkup.”

Ladies, have you ever tried to get dressed, pull your pants down to go to the bathroom, floss your teeth, cut vegetables or an apple, just live your life the way two-handed people do? It’s damned inconvenient. And slows me down, probably a good thing.

So here’s another lemon in my life: the broken arm.

Lemonade? It could  have been SO much worse. I could have had a concussion, broken a hip, compromised my legs and ability to walk. Walking, oh wow, that’s number one on the gratitude list. If that were compromised I might have just had to put everything on the cancer side of the drama on hold until I could walk again! So lots of silver linings to pay attention to and deeply felt joy and gratitude that it’s just a broken arm. Oh, another glass of lemonade? My ability to see all the silver linings and allow them to elevate my spirit.

The spiritual part of this journey is absolutely essential to holistically healing my body. My alcoholism recovery is the basis, of course, for all this healing and has saved my life. Minimal whining, endless joy and gratitude, A deeply held faith that life is unfolding for me as it was meant to. I’m in God’s hands. And however much time I have left on this earth, I will live it to the best of my ability, and accept, gracefully accept, God’s will for me.

Amen, and stay tuned for the continued cancer part of my saga!