I think we, who are willing to be in this room and undergo personal change, are brave souls.
When I joined Al-Anon, I was in my Fifties, and anxious to save another person I loved. But oh what a joy it’s been to let go of that obsession, which was becoming so shrill and counterproductive.
I was relieved to turn the focus back on myself and learn that my faulty attitudes were the source of my pain, not the people around me.
Regarding the amends steps, it’s possible to overuse them, just as we might exaggerate our negative defects in the 4th step. I’ve done both! That’s why it’s so important to understand the purpose of amends: reaching personal freedom.
These are intended to be hopeful steps, not self-flagellation. Making this list and then acting on it is just another way to weed our garden. My husband’s always reminding me to weed close to what we’re growing, so that nothing interferes with the growth of the plant.
Making amends is not always pretty, and rather than freedom I sometimes look for forgiveness and closure. With my daughter, Annie, she threw them right back in my face. So I knew I was on the wrong track to expect absolution from her, and my sponsor helped me appreciate my efforts and then let them go.
My real reward has been surviving that loss without the need to punish myself for it. Truth is, I’m really not that important! Things happen in life, and it’s not always my fault.
Let Go and Let God (p. 28, 95, 107, 125131,n163, 220, 294, 361) “Every day there are decisions to be made and problems to be solved. When we notice irritations growing into tensions, tensions into near-panic, and old fears returning, it is time to stop and turn to God. We find that when we supply the willingness, He supplies to power.”
Remember, “our best thinking got us into the rooms.” In other words, our minds can be dangerous places to go without some help. In Al-Anon we turn to a Higher Power. It can be God, a tree, or the group itself. As long as it’s not just us. Our egos and willfulness can blind us so much to taking a healthy course of action. And we’re just trying to help our children, so it’s easy to rationalize and justify our actions. That’s where educating myself about the disease gripping my daughter has been so critical for me. Over time I finally accepted that I didn’t have the power to save her from her disease. That was a hard pill to swallow, but a necessary one. I learned to let go and concentrate on what I could control. That’s when I started to feel free and serene and able to move forward with my life. I wish the same for all my brothers and sisters in these rooms. God Bless!
“Serenity? What’s that? For years I was like a weather vane that spun around according to the air currents that other people generated…I attributed these mood swings to nervousness, lack of assurance, and whoever else occupied the room at the time. Serenity always seemed beyond my control…where does this serenity come from? It comes from trusting that everything in my life is exactly as it should be…it comes when I choose to care for myself rather than to fix someone else…
Thought for the day: I am powerless over many things, but my serenity is not one of them.”
Trust—a kind of steadiness— leads to surrender which leads to freedom.
This is a recipe for lemonade. But first you’ll need a few lemons. You can’t make this delicious fruit drink without the sour bitterness from the lemon tree. How you get from one to the other is not so complicated. Not if you want to live well.
Gene and I took a camping trip to Orcas Island recently. Probably just to prove to ourselves that we could still do it. Over the past thirty years, we have camped in some of the most horrible conditions imaginable: from near hurricane-force winds in the middle of the night that blew our tent off over our heads; to swarming black flies that sucked the living daylights out of me. But we were much younger then…
The first lemon on this trip was that I absentmindedly booked the 5:55 am ferry out of Anacortes. I must have been asleep when I did that. Wild horses couldn’t have gotten us to a ferry at that hour. So we showed up at 12:35 when I thought we’d be leaving.
“Sorry, but can’t you see the 5:55 am time on this receipt? Go wait in the standby line.”
“Thanks, pal.”
Lemonade? We made it onto the ferry.
The next lemon on our Orcas trip was where we camped. Now, I knew better than to wait to the last minute to make a reservation. So in December of 2023 I secured a spot in Moran State Park on the island. The last one available! I felt so lucky. But I should have known better. Sometimes I think with cotton in my brain. Why was it the very last one available? Because no one else wanted it, dummy. I knew it wasn’t close to the water, yet I didn’t realize how far away it would be to schlep our canoe and kayak into the lake. But site #83 must have easily been the worst site in the whole park. Sandwiched in between many other sites and the restroom, there was naturally a steady stream of people and screaming babies on their way to the bathroom right through our site. So, no privacy. No view. No water.
Lemonade from this lemon? We didn’t have to walk far to pee; and there was trash and a water spout right next to us.
Speaking of our boats, of all the beautiful places in Washington State to camp, we chose this state park because of all the lakes. I had recently bought a kayak and wanted to try it out in calm waters. Well, life happens, doesn’t it? My bilateral carpal tunnel syndrome acted up so violently last May that I had to have both hands surgically repaired. One in June and the second one in July, a week before our trip. Needless to say, I had no working hands to paddle either Gene’s canoe or my kayak. Terrible timing.
Lemonade? If we had taken the boats, it would have been much more physical labor that we were definitely not up to right then. And I chose to let my hands heal over proving myself in my kayak. A healthy choice.
Back to the campsite. Our tent that Gene hastily stuffed into its sack had several broken poles, so we couldn’t put it together. The backup tent was another conundrum for us. But Gene jerry-rigged its raising with a couple of walking sticks. It’s the same tent we used in Yosemite in 2006. And small. We didn’t mind practically sleeping on top of one another back then. But we do now.
Lemonade? Gene gallantly offered,
“I think I’d rather sleep out in the open air anyway, under the stars. Haven’t done this since Ely in 1999.”
God Bless Him!
Honestly, how long has it been since we last car camped? Maybe six years? We were so out of practice that we forgot how to pack the food in the cooler. Safely. I dutifully made lots of sandwiches beforehand so we’d had plenty of ready food to eat. Wrapped each one in plastic to protect them. Oh no! At every gas station we went to, Gene got a bag of ice and all those ice cubes cascaded down into the bottom of the cooler where I had packed our sandwiches. A day into the trip I went to get some of those sandwiches for lunch. A wet and soggy mess. I ate my peanut butter one anyway because I hate to waste food. Or maybe to self-punish. But Gene couldn’t stomach ham and cheese on soaking wet bread.
Lemonade? I relearned how to pack an ice chest. And we had plenty of good backup food to eat. Plus, Eastsound was close with great restaurants. We ate well the whole time.
I frequently get night sweats with my cancer. Annoying in my bed at home, they were a real pain in my sleeping bag. I awoke in the night to a soaking bag up around my head and neck. But, as always, I went back to sleep. Then during the night it had dried out but left a hard, crusty film on the lining of my bag. I asked Gene about it, and he said,
“It’s probably dried sodium that left your body.”
Lemonade: so that’s why I have low sodium counts in my bloodwork even though I eat enough salt every day to fill a salt shaker! Mystery solved.
For comfort, we brought two camp chairs. Gene’s broke as soon as he sat in it. My fault for leaving it outside all winter. I threw it in the trash.
Lemonade? I sat in the remaining one. Gene sat in the car, happily dozing much of the time.
Lemon: I have a case of my second memoir, Stepping Stones, that I’ve run out of places to unload. Women’s prisons are next on my list. Lemonade: I brought a few to Darvill’s in Eastsound to donate. He accepted them and will consider stocking my title. Just pass ‘em around. There’s good spiritual healing to be found in the pages.
And so I come to the end of my recipe(s) for lemonade. And it’s fitting that I end on a spiritual note. Because to reach a happy conclusion when life throws lemons at us requires some semblance of positive rationale-building. For every one of those lemons I could have whined and thrown myself into fits of hand-wringing and anxiety. I’m quite capable of doing that. But to what end? An attitude and camping experience far more bitter than most lemons taste. So…my choice these days—Gene has always had an even temperament, except when he doesn’t—is to put a positive spin on whatever was happening. A worthy challenge.
Why? Because turning lemons into delicious, sweet lemonade beats walking around with my lips pursed from sucking on sour lemons. And we did prove to ourselves that we could still go camping, as ill and infirm as we are now. Gene is still nursing a broken foot. And I’m bone-tired from lymphoma. But we did it and survived, proud that we still could.
We only get one spin around the race track. Might as well try to make it a happy one. Beats bitchin’!
Humor Being able to laugh out loud—at myself most of all—keeping things in perspective—is so critical, and you can’t do that by living in a bubble. I was stuck in a hole of depression, but recovery has offered me a way out.
I had to force myself out of isolation and start talking more to people. I always came away learning something and even feeling less depressed because I wasn’t alone. I learned not to take myself and my problems so seriously and smile more. The program helps me to stay focused on the solution and not the problem. The solution offers me relief because I don’t have to fix everything. What a revelation!
Learning to let go of control and determining what, in fact, is uncontrollable was a milestone for me. Remaining open to joy and beauty, and always feeling gratitude in my heart for my blessings.
The Bad Stuff When tragedy strikes us we are tested in new ways. I was bankrupt spiritually and was not equipped to deal with life’s challenges. Fortunately I picked up some important survival skills later in my life:
Gratitude: There is always something for us to be grateful for, if only the weather. Where depression and dysfunction used to be in my headspace, it’s been replaced with a new default mode. I like to keep things simple. Instead of bemoaning what I have lost, I focus on all that is left. Suffering and martyrdom had diminished my ability to live well, and I have abolished them from my life.
Acceptance and faith: If I can’t change it, whatever it is, I will accept it with as much grace as I can muster. And follow this with confidence in God’s plan,
Humor: Oh, laugh about it, Marilea. You and your problems are not that important!
From Each Day A New Beginning, July 3: “Finding humor in a situation, any situation, prevents us from succumbing to feelings of powerlessness. Feeling powerless, behaving as victims, came easily for many of us before we chose this program and the Twelve Steps to live by. Choosing a humorous response, opting to laugh at our situation, at any point in time, keeps our personal power where it belongs—with ourselves.”
“Normally my sponsor would recommend a gratitude list when I felt low, but one day, when I complained about a family situation, he suggested that I list all the things I was unhappy about. Several days later my depression had passed, and when I told my sponsor about the terrific day I was having, he suggested a gratitude list. He thought it might help me to refer to it the next time I felt blue. That made sense to me, so I complied.
When I went to put this new list in the drawer where I keep my papers, I noticed the earlier list and read it once more. To my surprise, my list of grievances was almost identical to my gratitude list—the same people, same house, same life. Nothing about my circumstances had changed except the way I felt about them. For the first time I truly understood how much my attitude dictates the way I experience the world.
Today’s Reminder:
Today I recognize how powerful my mind can be. I can’t always feel good, and I have no interest in whitewashing my difficulties by pasting a smile on my face. But I recognize that I am constantly making choices about how how I perceive my world. With the help of Al-Anon and my friends in the fellowship, I can make these choices more consciously and more actively than ever before.”
‘Change your thoughts and you change your world.’ Norman Vincent Peale
I can make an effort to be grateful instead of sad. It’s a conscious choice—because I want to be happy.
I determined to continue being a squeaky wheel. The secretary I called daily told me to pay attention, instead, to my garden. Yup, she really said that. Then she stopped answering my calls. So I messaged Dr. Malakoti and asked what the two-month delay since my last PET scan was about. I told her I was getting nervous because I’ve had symptoms for eight months without a diagnosis. A week later I got a call from the surgical suite at University of Washington.
“Hi Marilea. I’m calling from Dr. Kim’s office at UW. He wants to see you right away, tomorrow if possible at 1:00 to schedule your surgery. Can you make it?”
“Can I make it? With bells on. I’ll be there, and thank you!”
So Gene and I raced down to Seattle to meet my surgeon. He was very nice, and when I gave him the timeline of my symptoms, he looked alarmed.
“How soon can you get me in for surgery?”
“By Friday or next week at the latest. I’ll meet with my team and put you in at the head of the line. This qualifies as an emergency and we want to see what’s going on right away.”
“Oh, thank goodness! And how soon will it take for pathology to get back to you?”
“Three to five days. My nurse will come in to talk about preop procedures for you, and my secretary will call you to give you a surgical date.
And just like that I’m all set up for my second excisional biopsy with a promised diagnosis within a week thereafter. I’ve been living in limbo for so long that I’m not sure how I feel. With a definitive diagnosis (hopefully) comes the acceptance I crow so loudly about. We’ll see if I can manage it.
The biopsy went well. And I behaved myself: no activity for two weeks.
Which I did. Just in time to get the news that I do, in fact, have lymphoma.
I’ve kind of known this all along. Arrogant? No, more like intuitive. My symptoms are glaring—and now add fatigue to the mix—so I’ve always known I was very sick with something. But the night sweats aren’t “exotic” anymore. They’re just annoying, and I would like them to end. I’m glad to have a diagnosis so that some form of treatment can begin.
This story in nine parts has been my attempt to articulate my feelings, a healthy practice. My playing “Dr. Google” may or may not have been helpful. I have found no one in the medical community, including Dr. Julia, to discuss my case frankly with me. So all my research has been an attempt to get out in front of it all, prepare myself for my reality, and feel somewhat in control of a process that isn’t really mine to control. As a friend of mine told me,
“We are of an age when the fates will play their cards.”
“I’m so grateful I found a way out of sadness, a way to take care of myself each day, and a relationship with the God of my understanding, who will never abandon me. The pain I’ve felt in the past is equal to the measure of joy I feel now.”
That’s quite a mouthful. Whoever wrote those words in “The Forum” is saying that somewhere between despair and happiness she or he did some work, found some answers. For me, anyway, I entered into a state of grace. I quite deliberately let go of my pain, which served no further purpose in my life. The lessons it taught me have been learned. I’ve put my sadness in a back drawer—and replaced it with positive thoughts that keep me motivated to reclaim my life, my remaining loved ones, and keep my heart ticking.
“…What I had overlooked in Step Two was the word ‘Power.’ The day I started placing my attention on that Power instead of on insanity, I began to see miracles in my life. One such miracle was my ability to talk about my fears in Al-Anon meetings. Other miracles included taking the Twelve Steps that lead me to serenity, and engaging in the process of forgiving and healing.”
It has taken many years of hearing Step Two read at meetings for me to really hear the word ‘Power.’ Now I realize how much more awesome my Higher Power is than this disease. Instead of dwelling in fear—and listening to my worst instincts—today I am striving to pass on the miracles of recovery to my children and grandchildren. If we keep doing this then, maybe not in
my lifetime but in theirs, we will see a change in how substance use disorder is treated around the world.
When my ego is involved and there’s a calculated risk, I’m going to be gutsy, not courageous. It takes guts to ski a steep trail; I alone will be rewarded. Courage is different. There is always a parenthesis of fear in Courage; the risk becomes minor. This parenthesis remains a void of fear until it is filled by God. There is no ego in a courageous act. Courage can ask for help. It is often something done for someone else, or it may be something I am not attracted to doing at all. I may lose by doing it. The courageous act is often the unpopular choice, to do or not to do. The results are seldom only mine. It requires more of me than I want to think I can do, alone. After it is finished, gratitude to someone or something is usually in order. Courage requires a moral strength not of myself. This strength is given by faith.”
EGO—Easing God Out—is my enemy in many ways. It makes me willful and arrogant. It’s the great separator—of me from people, of me from God. When I let God back in again, my life and my relationships seem to work better. And God has always given me the courage to do what is difficult in relation to my daughter. My faith in Him has given me the strength to do what I believe is right, regardless of the consequences. I believe things are unfolding as they are meant to. When I surrender to this belief, I am at peace.