Isolation

The Spirit Within

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“The world cannot be discovered by a journey of miles…only by a spiritual journey…by which we arrive at the ground at our feet, and learn to be at home.” ~Wendell Berry

Without the gift of spirit in my life, I would be drifting on an island in the middle of the ocean. Spirit can be anything we want it to be: some people say God, or Higher Power; others focus on a statue or a tree in the garden. It doesn’t matter. What’s important is that it’s not US. “My best thinking got me here.” (into the rooms of recovery)

Here’s another acronym: EGO=Easing God Out.

That floating island in the middle of the ocean can be a dangerous vessel without a steering wheel. Maybe not dangerous; just completely self-reliant and without guidance.

Self-reliance was something I learned as a child because I had to. The adults in  my life were often distracted with their own problems, so I learned to do things by myself. This was a vital survival strategy when I was a child. But as an adult, it became a huge defect.

As an adult, I’ve too often carried that survival tool into situations in my life that required outside guidance. Too proud sometimes, or afraid, to ask for help or advice, I steered my ship into some dangerous waters. Like everyone else, I’ve made mistakes, and some of them were preventable if I’d had the humility to ask for help.

So, again like everyone else, I’m just a child of (God, a tree, the stars), and I’m growing every day, learning (hopefully) from my mistakes and trying to do better. Humility is a great leveler, and it has brought me closer to the one thing I’ve missed all my life: being part of a community of equals. When I’m in touch with the spirit within me, I’m no longer alone or isolated. I’m at one within my fellowship—and it feels good to be alive.

Surviving The Slumps

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Surviving The Slumps

From The Language of Letting Go, by Melody Beattie

“A slump can go on for days. We feel sluggish, unfocused, and sometimes overwhelmed with feelings we can’t sort out. We may not understand what is going on with us. Even our attempts to practice recovery behaviors may not appear to work. We still don’t feel emotionally, mentally, and spiritually as good as we would like.

In a slump, we may find ourselves reverting instinctively to old patterns of thinking, feeling, and behaving, even when we know better. We may find ourselves obsessing, even when we know that what we’re doing is obsessing and that it doesn’t work.

We may find ourselves looking frantically for other people to make us feel better, the whole time knowing our happiness and well-being does not lay with others.

We may begin taking things personally that are not our issues, and reacting in ways we’ve learned all too well do not work.

We’re in a slump. It won’t last forever. These periods are normal, even necessary. These are the days to get through. These are the days to focus on recovery behaviors, whether or not the rewards occur immediately. These are sometimes the days to let ourselves be and love ourselves as much as we can.

We don’t have to be ashamed, no matter how long we’ve been recovering. We don’t have to unreasonably expect “more” from ourselves. We don’t ever have to expect ourselves to live life perfectly.

Get through the slump. It will end. Sometimes, a slump can go on for days and then, in the course of an hour, we see ourselves pull out of it and feel better. Sometimes it can last a little longer.

Practice one recovery behavior in one small area, and begin to climb uphill. Soon, the slump will disappear. We can never judge where we will be tomorrow by where we are today.

Today, I will focus on practicing one recovery behavior on one of my issues, trusting that this practice will move me forward. I will remember that acceptance, gratitude, and detachment are a good place to begin.”

Living In The Solution

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I messaged a friend on Facebook: “Oh, God Bless, Maryann, my heart goes out to you and all of us mothers. I often say on these sites that I’m grieving a living death because Annie, my daughter, is not the person who’s walking in her shoes. She’s split right down the middle. Anyway, we all have different stories, but some parts are so familiar. My recovery is all about finding solutions for myself, and I hope it helps you too. One thing I’ve learned on this difficult journey is to live in the solution, not in the problem. That’s how I’ve learned to be happy. Hugs to you!”

From a Nar-Anon handout: “People like myself whose problems have brought them to the point of despair have come to Nar-Anon to seek advice and find solutions. As soon as they attend the first meeting they feel like they have come home and feel like they are among people who really understand. And fortunate is the newcomer who finds a group that permits such expression. It gives those who have gone before them a way to give encouragement and hope. The newcomer discovers that it is by giving and receiving in our sharing that we are able to heal ourselves, and slowly we are able to regain control of our lives again.

But still more fortunate is the newcomer who finds a group that does not allow such unburdening to continue meeting after meeting. There is work to be done; Nar-Anon is not a sounding board for continually reviewing our miseries, but a way to learn how to detach ourselves from them.

A Recovery reminder:

I will learn by listening, by reading all the Nar-Anon literature as well as all good books on the subject of substance use disorder, by working and trying to live the 12 Steps. The more I read and study the more knowledge I receive. Knowledge is power, and I will be able to help myself as well as others.”

One Path To Recovery

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“We rise by lifting others.” Robert Ingersoll

I grew up in an alcoholic family. There was a lot of dysfunction around me and, to make a long story short, I was severely depressed. That led to a number of other problems, of course, and so my mother got me into volunteer work when I was thirteen, hoping it would relieve my anxiety and sadness. It wasn’t the immediate panacea that we’d hoped it would be, but it was a step in the right direction. And it brought me out of my isolation.

Life unfolded for me in a dizzyingly assortment of ways: there were three children including my substance user Annie and all the heartache that goes with her illness; a lot of travel; and a fulfilling teaching career. I’m also a recovering alcoholic. But I’ve had a great life and I am very grateful for my blessings. And through it all, thanks to my mother, I’ve been a volunteer in various different organizations. The work has kept my perspective healthy and made me feel better about myself, something I sorely needed. And it’s taken me most of my life and much 12-Step recovery work to truly celebrate myself fully. Helping others always helps me more.

“When I Got Busy, I Got Better”

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From “The Forum,” August 2015, p. 15:

“Going to meetings helped me understand the first step, which I consider the cornerstone of the program. I cannot repay Al-Anon enough for what it has done for me. One thing I did from the very beginning was to serve the fellowship. Service strengthened my recovery and gave me a chance to pay forward what I’ve received.

My loved one has been in and out of sobriety for the more than 20 years since I joined the program, and whether my loved one was sober or not, I never gave up, slackened my attendance, or service to Al-Anon. Today I can accept that my life is important and that I have a choice to continue obsessing or get on with my life. I accept that alcoholism is a disease and Al-Anon helps me to face the disease and not let it get me down. I feel alive because of Al-Anon. Working the Twelve Steps led me to a spiritual life that gives me much peace and joy.”

Lifelines are all around to help us cope with life’s challenges. Exercise, good nutrition, gardening—the list is endless. Fortunately there are many outlets to choose from, and I’ve used all of the above. But the tools—life lessons—that I’ve learned in several 12-Step fellowships have changed me as well as the way that I relate to other people. I’ve heard it said that alcoholism is a disease of relationships, and whether that’s true or not I can certainly see the improvement in how I behave with others. That, in turn, has made me a happier person. So this has been my lifeline, because working the program has made such a big difference in my life.

Walking Through Cancer: Part 19

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The Rewards of Friendship

It’s part of the human condition to take things for granted sometimes. We have a myriad of excuses, of course. We wouldn’t want to do periodic self-assessments to see if we need to change anything. The older we get, the more set in our ways, the more prideful we become. We’re doing fine, we say, it’s young people who need to shape up and emulate us!

This is why I am a “grateful alcoholic.” If I hadn’t been a substance abuser and had to face terrible personal consequences because of it, I might never have tried to change my character. Enter Twelve-Step recovery, a guide for living that helps us be the best people we can be.

That’s it, just a few guidelines to follow, many of which strangely echo the Golden Rule. Most of my childhood friends don’t remember me because I was very unhappy in that town. When we moved away, I never looked back, and neglected to keep up with them, sure that it would be of little consequence.

My oldest friend in northern Virginia was my best friend for years. Our children grew up together, and we were a constant support for each other. But after I moved West with Gene, I dropped her as well. Out of sight, out of mind?

But I’m happy to say that I reached out to Gail recently and we arranged a Zoom chat on her account. First, the amends. I was so sorry for carelessly discarding her like I did. “No apologies are necessary.” she offered, “we all have busy lives.” And we proceeded to chat as though no time had passed. What a gift to us both to reconnect like that. And all because of cancer.

Cancer can be a deal breaker in some ways. It was telling Gail about my cancer that was the conversation opener in my email, and something she responded to, predictably, with love and concern. It can serve as a motivator in so many ways: from valuing our days as though they were numbered—and living accordingly; to making amends to people we’d been avoiding because we can do it later.

It has to do with vulnerability. Allowing myself to be vulnerable is hardly a sign of weakness. I’ve been told over and over from people who’ve read my memoirs that it’s a particularly appealing trait. If nothing else, it evens the playing field among friends and acquaintances. No more need to compete. We are all equals.

Before I went into recovery, my outside didn’t match my inside. If I had any friendships at all, most of them were pretty superficial. But as I’ve become more comfortable in my skin, I’ve become more honest with everyone.

And the rewards? Many more friends, an end to loneliness, and deep gratitude that I have been given a second chance to live life better than before. I’ve enjoyed such a wonderful life. And now I have the good sense to appreciate it and reap the rewards.

Walking Through Cancer/Part 16

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                                         The Graveyard Shift

This is bizarre. It reminds me of when I had carpel tunnel syndrome last spring: I was in such burning pain that I couldn’t sleep. But that passed with time, and this insomnia will, too.

My new sleep schedule: I fall asleep between 7:00 and 9:00 at night; then I’m up at 11:30ish; I watch videos until my eyelids start drooping, usually a couple hours; then fall back to sleep until, if I’m lucky, 4:00 am, when my day begins. I drink a mocha, check emails, etc. At 5:00 I eat breakfast; at six I can start the work of the day: my writing. This consists of my daily gratitude journal and for the past six months my cancer diary. It’s pretty long, over twenty-five chapters, both before and after my diagnosis.

By 10:00, I start to fade and take a nap, about an hour. But before I nap, I eat a sizeable protein snack. After I wake up, I work on my computer until 12:00, lunchtime. Well, I guess some things coincide with real life! I go downstairs to watch Nicole Wallace, and even though the news is depressing, I love to listen to her  guests, especially Tim Miller.

Then I’m ready for another short nap, another snack, more writing, and then dinner with Gene. So, you see the routine is trying to glide into some semblance of normalcy. If I could just sleep through the night…

Why the insomnia? I only take prednisone for five mornings in a 3-week infusion cycle, so I’m not convinced it’s that, though it has a monstrous reputation. Then I read an article called “Why Do Cancer Patients Have Anxiety?” Geez, ya think?

Out of boredom, I started playing Dr. Google again. I read that my type of non-hodgkins lymphoma is not only incurable but has a very poor prognosis. Tell that to the lady who whizzed through 6 miles of Disneyland without getting tired!

The truth is that they are making huge strides in cancer research every day. Right now I’m undergoing my first line of treatment. My oncologist also has me in a clinical trial concurrent with my chemo. The theory is that if I go into remission, it might last a few years longer. Dr. Poh gave me a gold star when I saw her on Monday.

I believe in my heart that remission awaits me. I just don’t know. What I do know is that t-cell lymphoma is usually “refractory,” meaning it will come back with a vengeance, resisting the chemo I got before. This is when I’m glad it’s nearly 2025 and not twenty years ago. There are a number of new treatments they will surely try. But, as usual, I’m getting ahead of myself. I’m only halfway through this first line of treatment. February 3 is my last infusion. We’ll see what the PET scan shows, if  Dr. Poh can claim me to be in remission or not.

Fingers crossed!

Walking Trough Cancer/Part 6

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                                                   Now, it Begins…

It’s been a long, hot summer with family around most of the time. But no cancer treatment, a good thing so I could fully enjoy them.

Big girl pants, the time has come.  It’s September 11.

I’m scheduled to have my port implanted in two days, at 8:00 in the morning. So, another hotel stay to avoid having to wake at 5:00 am so that we’ll be on time. We’ve had to do this several times on this journey and we’ve turned them into  mini-vacays and dinners out together. There will surely be more. Lemons to lemonade, a lifelong skill!

I have been nervous about the port placement. But once again the nurses there added some conscious sedation to my IV so that it would be bearable. And it was, just pretty sore afterwards when the lidocaine wore off. I’ll get to see if my new mattrass will keep me on my back.

It feels weird having a foreign object in my shoulder, and I don’t particularly like it. But it’s really the most efficient way to receive my transfusions. A few people who have used their veins have seen them turn black from the poisonous liquid. Chemotherapy saves many, many lives, but it also has a well-known dark side.

After a long, dry period, things are moving quickly because the clinical trial is about to reopen. And they are nothing if not thorough at Fred Hutch. My port is in pace now. Next week I’ll have another PET scan. Then I’ll have my third bone marrow aspiration right after that. And the last procedure that I know of is a heart exam called a MUGA scan, which is a trip through a machine with some liquids in my vein to check the status of my heart. This last test is to see if my heart is strong enough to tolerate the chemotherapy.

After months of delay and frustration, it looks like I’m about to start climbing that mountain. I’m feeling energized and optimistic. To fight the feeling that my life is out of control, I try to stay as well-organized as possible. I bought a “chemo cap” from Amazon which, when kept very cold, you put on just before the infusions begin. The rationale is that the cold will insulate my hair cells from the harmful chemotherapy, preventing my hair from falling out or at least helping it grow back quickly. I’m not optimistic about its efficacy, but I’m willing to try anything to feel “normal” during the process. And I have a pile of scarves and bandanas o cover my head if necessary.

My friends have donated them all to me. Because of all the support I’ve been given from so many, this has not been a lonely journey. Even if I can’t fully prepare for what comes next, I know that I am in the loving arms of friends, family, and God, most of all. I know that, from beginning to end, I will never be alone.

Living In The Solution

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I messaged a friend on Facebook: “Oh, God Bless, Maryann, my heart goes out to you and all of us mothers. I often say in my book and on these sites that I’m grieving a living death because my daughter is not the person who’s walking in her shoes. She’s split right down the middle. Anyway, we all have different stories, but some parts are so familiar. My books are all about finding solutions for myself, and I hope they help you too. One thing I’ve learned on this difficult journey is to live in the solution, not in the problem. That’s how I’ve learned to be happy. Hugs to you!”

From a Nar-Anon handout: “People like myself whose problems have brought them to the point of despair have come to Nar-Anon to seek advice and find solutions. As soon as they attend the first meeting they feel like they have come home and feel like they are among people who really understand. And fortunate is the newcomer who finds a group that permits such expression. It gives those who have gone before them a way to give encouragement and hope. The newcomer discovers that it is by giving and receiving in our sharing that we are able to heal ourselves, and slowly we are able to regain control of our lives again.

But still more fortunate is the newcomer who finds a group that does not allow such unburdening to continue meeting after meeting. There is work to be done; Nar-Anon is not a sounding board for continually reviewing our miseries, but a way to learn how to detach ourselves from them.

A Recovery reminder:

I will learn by listening, by reading all the Nar-Anon literature as well as all good books on the subject of substance use disorder by working and trying to live the 12 Steps. The more I read and study the more knowledge I receive. Knowledge is power, and I will be able to help myself as well as others.”

The Yin and Yang Of Living

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From Each Day Is A New Beginning, November 19:

“’Experience is a good teacher, but she sends in terrific bills.’ ~Minna Antrim

Our longing for only life’s joys is human—also folly. Joy would become insipid if it were our steady diet. Joyful times serve us well as respites from the trying situations that push our growth and development as women…Joy and woe are analogous to the ebb and flow of the ocean tide. They are natural rhythms. And we are mellowed by their presence when we accept them as necessary to our very existence.”

Recovery has mellowed me. My growing faith has taken the sting out of the loss of my daughter. I was angry, self-destructive, heartbroken, and guilt-ridden…the list goes on. But that path was leading me nowhere.

One day I woke up with a bright light shining in my face. It was warm and melted away my rough, icy edges. A voice was calling to me; I think it was one of my grandchildren and she said, “I’m right here now, Bela. Look at me! See, I’m wearing the dress you gave me. Please come to my recital!”

I went to her recital and many others afterwards. And I learned that my mother’s heart could be filled up over and over again by these children and so many others. The heart has a great capacity to renew itself and heal. Acceptance of that which I cannot change has helped. And listening to the voices of others—long silenced in me—ring loud and true now as hope for the future.

All will be well.