“Life Is A Box Of Chocolates…”

From Courage to Change, March 12:

“What does another person’s mood, tone of voice, or state of inebriation have to do with my course of action? Nothing— unless I decide otherwise….

Detachment with love means that I stop depending on what others do, say, or feel to determine my own well-being or to make my decisions. When faced with other people’s destructive attitudes or behavior, I can love their best and never fear their worst.

‘Detachment is not caring less, it’s caring more for my own sanity.’”

Well, it took me a long time to get to this place, where I felt I deserved to be sane and healthy. I needed to shed a lot of baggage—things like guilt, low self-worth, and the thrill of martyrdom—in order for Al-Anon to work its magic on me. Guilt, in particular, cripples us and puts at risk when we need to set limits. Not until I did this was I able to set healthy boundaries with the people in my life. Like all card-carrying codependents, I didn’t know where I ended and the other person began. I was enmeshed in everyone’s difficulties, my daughter’s most of all, which effectively kept me from facing myself in the mirror and dealing with my own defects and resulting problems.

I’ve learned many healthy life skills in my program of recovery, and I would pass them on whenever I could. As Forest Gump’s mom would say: “Life is a box of chocolates; you never know what you’re gonna get.” That’s true of course. But the secret of being happy is making the best of what you get, no matter what that may be.

Lighting Candles In Greece: Lessons In Faith

I was on the tour boat in the caldera of Santorini and we were approaching Oia at the end of the day, hopeful to catch the sunset from that end of the island. Oia, and most of the towns on Santorini, looked like horizontal white jewels, sparkling against the sun’s rays, perched atop this rock in the Mediterranean. It was a stunning sight and can only be appreciated like this from down below.

We disembarked and decided to forego the smelly donkey ride up to the city, deciding to walk up. I was immediately drawn to the Church of Panagia Platsani. After entering the cathedral, I went right to the candles and lit one for my estranged daughter, Annie. I found this to be wonderful nourishment for my soul. The cynical me said, “Oh well, another money maker.”  But the believer in me said, “Listen to me, God. I’m talking to you now. This is my prayer.”

I’ve heard it said that prayer is talking to God, and meditation is listening to Him. I did a lot of praying in Greece, in many Greek Orthodox churches. I spent a tidy sum of money, money I could have invested in souvenirs. But I chose to invest in prayer in the country where I began to lose my daughter thirty-five years ago.

“Losing my daughter…” We learn so much by craning our necks and looking backwards. We gain so much clarity through hindsight.

It’s very hard, this practice of letting go, and the faith I’ve been gradually acquiring these past many years has been a lifeline. It’s kept me from permanently free falling into despair—that black hole of uselessness—as I’ve been letting go of having Annie in my life. Only a mother can know the glue that binds her to her child, and all mothers must let go of their children. “They come through you,” Kahlil Gibran says, “yet they belong not to you.”

Letting go is a constant discipline for all of us. But letting go when your child will be coming back is one thing. Letting go when they’re gone—that’s something else. My girl has a brain disease and has been pumping her body with substances that have caused a lot of brain damage. It’s a very cruel thief, substance abuse. It robs you of yourself. My daughter Annie no longer resides in that body.

So I light candles in the country where circumstances threw her into a tailspin of depression. Her parents divorced and she rarely saw her father afterwards. Annie got through adolescence adequately, but she was a grenade waiting to explode. When she was twenty-one and a college graduate, she plunged into the dark world of drug addiction and has remained in that never-never land ever since—that fantasy world where what you want never comes and so you need to get more…

My faith has come to me, not like a burning bush, but in increments over my own years of recovery from this.

The Seasons Of Our Lives

“Expect to have hope rekindled. Expect your prayers to be answered in wondrous ways. The dry seasons in life do not last. The spring rains will come again.” 

Earth’s renewal is manifest all around the globe. Seasons around the world are remarkably varied, depending on climate and geography. Where I originally come from, New England, we have four seasons, distinct from one another. The chilly autumns at that latitude create the deep reds in the leaves in Vermont, for example, whereas the leaves blanketing the Rio Grande River, due to the heat, rarely achieve that color.

I lived in the Rio Grande Valley of Albuquerque for a decade, and though we had four seasons, they were noticeably different from New England, both in their timeframes and their intensity. One could say that New Mexico is a land of extremes, never made more clear than by the prominence of its seasons.

In Albuquerque, the leaves change color from the frosty night air. This is a welcome change from the brutal heat of the summer. But there, the leaves turn saffron yellow, not the reds I used to see in New England.

In New Mexico, autumn is a gorgeous and productive lingering—well past Thanksgiving. It’s harvest season and the farmer’s markets overflow with abundance from the ground. Many holidays come in autumn and on the cusp of winter. These are always poignant times of the year for me, but now more than ever they are times to take stock and savor all that I have.

Winter drops like a curtain, and a couple of weeks before Christmas, Mother Nature lowers the boom. Winter is bitter in the high desert. Where I lived, there was very little snow. Sandia Mountain, across the rift valley from my farmhouse, attracts all the “weather.” At nearly 6000 feet, the air is cold even with the sun shining, though the temperature rarely drops below freezing.

Winter rings in differently state to state. But universal, in the areas where cold weather does settle into our bones, is the wish to smell spring in the air. This is where geography affects the heralding of spring in the Rio Grande Valley. Powerful winds blow up from the canyons like invisible giants blowing away everything in their path. My first experience of this had me amazed and flummoxed by the fierceness and ferocity of the winds, wondering what happened to the gentle spring times from my youth. But they would come soon enough.

I finally enjoyed watching the trees coming out of dormancy and preening like peacocks, their colorful buds in bloom. I thrilled to see the first flowers peek up from the ground. And gradually I saw the resurgence of nature in all its glory. It is the season of renewal, of new beginnings, as though the earth were starting over.

But spring in Albuquerque ends with an intensity of heat and humidity that is unexpected in one of the driest states in our country. This is because the monsoon season is preparing to unleash itself where it is most needed. Summer is ushered in by the skies opening up to a kaleidoscope of colors at the end of each day. This is when I take cover on the patio to listen for the thunder preceding the deluge of water soaking our gardens. On one occasion it was hail the size of golf balls killing all our tomatoes. Buckets of rainwater cause the gutters along the streets to overflow.

The monsoons leave as abruptly as they began, and July and August settle into an oppressive climate of high temperatures and dust filling the air. The blazing sun, which is a God to the indigenous people of the Diné tribes, became my enemy, and I took refuge inside my house, free from the enervating heat that sapped me of my energy.

By September, as the earth’s axis started to point in the other direction, the intensity of the sun weakened, and the relief of cooler nights began, though the days remained hot.

And so began the cycle of seasons starting over. Autumn and all its colors began to peek though the curtain of summertime dust of brown and gray.

Time is relentless; it doesn’t stop for anyone. Time may be finite, but endless are the possibilities we can do with it. As long as we have time in our lives, we have the chance to start over, just as the sweetness of my honeysuckle hedges signaled the starting over of summer.

Life goes on, and we with it. Whether it’s the seasons we observe, or the seasons of our lives, we are always starting over.

Wake Up America!

From “Thirty-One Days in Nar-Anon,” Day 29:

“Through the sharing of other members and the warmth of their friendship, I started to develop a new strength. I recognized my powerlessness, accepted drug substance use disorder as a disease and avoided having expectations. My frustrations began to vanish. With all the knowledge I acquired through the Nar-Anon program, literature and phone support, I became more open-minded. This brought me a sense of serenity and helped me set more realistic goals for myself.”

Would we even be having this conversation if our children were suffering from diabetes? Of course not!

Substance use disorder is a gravely misunderstood disease, shrouded in secrecy, shame and stigma. Bikies, tatooes, and skid row…oh how times have changed! But thanks to the many programs out there that are educating the public about the true nature of addiction—that it’s a brain disease—awareness is increasing and attitudes are slowly changing.

Look how in one generation the American perception of alcoholism has evolved. We had a recovered alcoholic in the White House for eight years, a man who freely admitted that he struggled with alcohol when he was younger. Alcoholism is also a form of substance use disorder, and it’s my fervent hope that Americans will start to view substance abusers with the same compassion offered to many alcoholics. When public perceptions change, so will attitudes toward our addicted children.

My daughter is a heroin addict. If she felt less shame, would she be less isolated? I believe so. In a few other countries, and even in Seattle, WA, there are programs in place to help addicts manage their illness. This support is specifically designed to keep the crime rate down and help addicts be more functional in their daily lives. In my memoir, I wrote about how Gabor Maté, a doctor in Vancouver, has been an advocate for addicts for many years. He has made a big difference in that city.

How I wish things were easier for my daughter, that she be viewed with compassion and not judgment. But I do believe that because of our efforts to raise awareness and set up support programs, life will be easier for future generations. I take a lot of personal comfort in that.


Getting Out Of The Way

I’m a mother. When my kids were little, it was my job to keep them safe from harm. If they ran across the street with a car coming, I might have spanked them a little so they’d remember to look both ways the next time. Yes: pain; yes: consequences. Yes: both good teachers.

But when my daughter was twenty-one and started making terrible choices, I still thought it was my job to protect her from harm, self-inflicted or otherwise. And I still treated her like a two-year-old.

When she first stole from me early on, I went into a long period of denial and guilt, minimizing my feelings and believing her incredible explanations. My inaction only emboldened her, and she went on to steal in other ways. Several times, she stole my identity, with no explanations. So even when it was clear to me that her behavior was sociopathic, I still behaved inappropriately: I did nothing. Even when the credit card company told me to do something—that it would be a lesson for her—I still did nothing.

Where was the smack on the rear she would have gotten from running across the street? Where were the consequences that would have reminded her to be careful? I presented her with no consequences in the beginning of her illness and so she learned nothing. Her progressive illness got much worse. My guilt was crippling me as an effective parent.

Not until I started working my own program of recovery in Al-Anon was I able to release myself from the hold that was strangling us both. I needed to get out of my daughter’s way. She wasn’t two anymore.

I’ve made a lot of progress since those early days. I’ve learned to let go and leave her to the life she has chosen. Four rehabs helped her turn her life around for a while, yet she always slipped back into her substance abuse disorder and the life that goes with it. But staying out of the way has given me the freedom to take back my life and learn to live joyfully by focusing on my blessings. It has also given her the freedom to take responsibility for her own life and hopefully her own recovery. If she reaches for it again, and I pray she will, how much more rewarding it will be for her to find her own way!

Dancing In The Rain

The road to my spiritual life began when I was a young child growing up in an alcoholic family. But I didn’t start to walk down this road until halfway through my life when my daughter fell ill with substance use disorder.

I was very unhappy growing up. It’s a classic story of family dysfunction that many of us have experienced as children. But back then I didn’t have Alateen to go to. My father was never treated and died prematurely because of his illness. I, too, was untreated for the effects of alcoholism, and grew into an adult child.

Well, many of us know how rocky that road is: low self-esteem, intense self-judgment, inflated sense of responsibility, people pleasing and loss of integrity, and above all, the need to control. I carried all of these defects and more into my role as a mother to my sick daughter, and predictably the situation only got worse.

I was a very hard sell on the first three steps of Al-Anon, and my stubbornness cost me my health and my career. But once I did let go of my self-reliance, my whole life changed for the better. The Serenity Prayer has been my mantra every day. I’ve learned to let go of what I can’t change. I don’t have the power to free my daughter of her disease, but I can work hard to be healed from my own. This is where I’ve focused my work in the program.

My daughter has gone up and down on this roller coaster for more than twenty years, and right now she’s in a very bad place. But that has only tested me more. My faith grows stronger every day when I release my daughter with love to her higher power, and I am able to firmly trust in mine.

Friends of mine ask me, “How do you do that? You make it sound so simple!” I tell them, “First of all getting here hasn’t been simple. It’s the result of years of poisoning my most important relationships with the defects I talked about earlier. I knew I had to change in order to be happy. Secondly, I fill my heart with faith-based unconditional acceptance of whatever happens in my life. It’s my choice.

Somewhere in the readings, someone wrote ‘Pain is not in acceptance or surrender; it’s in resistance.’ It’s much more painless to just let go and have faith that things are unfolding as they are meant to. There’s a reason that HP is running the show the way he is. I just have to get out of the way; I’m not in charge. I also read somewhere the difference between submission and surrender: submission is: I’ll do this if I get XYZ; surrender, on the other hand, is unconditional acceptance of what I get. Well, the latter is easier because I’m not holding my breath waiting for the outcome. I just let go – and have faith. Again, it’s a very conscious choice.

We all have different stories. What has blessed me about a spiritual life is that I can always look within myself and find peace regardless of the storms raging around me. I’m learning how to dance in the rain.

Surrender Is Not Submission

From Each Day A New Beginning, July 19:

“‘At fifteen life had taught me undeniably that surrender, in its place, was as honorable as resistance…’ ~Maya Angelou

We had to surrender to a power greater than ourselves to get to where we are today. And each day we have to turn to that power for strength and guidance. For us, resistance means struggle—struggle with others as well as an internal struggle.

Serenity isn’t compatible with struggle. We cannot control forces outside of ourselves…And when we choose to surrender our attempts to control, we will find peace…”

I often write about the pain of resistance. How the very word carries an aura of courage and strength. Those of us who have addicted loved ones would do anything, it seems, to save them from such a miserable life. I spent a number of years trying to save my daughter—resisting—and refusing to allow her the dignity of her own (poor)  choices. I felt courageous then, determined. I couldn’t surrender to the power of addiction; I thought it would be cowardly.

But I tried and failed to save my daughter. She’s been in and out of recovery for over twenty years. And though I pray she reaches for recovery again and comes back to her family, I can’t make that choice for her. She can only save herself. And I truly believe that the addicts who recover do so because it is their own desire to get their lives back—not someone else’s.

So I’ve learned that I can only save myself. When I give up the struggle to change things I can’t control, my life is more peaceful. I find the energy to focus on gratitude for what’s good in my life.

Sometimes letting go—not resistance—takes courage.

Walking Through Cancer/Part 18

                                          Testing My Mettle…Yet Again

Last spring when I had raging carpal tunnel syndrome in my hands AND a viral mouth infection so severe I couldn’t eat anything but pablum, I whined that “it never rains, it pours.” Well, those two maladies were a walk in the park compared to falling down the stairs and breaking my humerus three days before my first chemotherapy infusion.

“God,” I said looking up as though that were where He lived, “You are really testing me. Geez, isn’t t-cell lymphoma bad enough without having to cope one-handed with my arm in a sling?”

It’s a good thing I couldn’t see Him because I knew he was smiling, sure that I would meet this challenge just fine. And I would have slugged him, I was so mad.

At myself, of course. I talk about remaining teachable and I think THIS time my self-will has wrought a bad enough consequence to make me stop in my tracks. How did this happen? I failed to turn the night light on, was nearly finished barreling down fourteen steps in slippery socks, missing the last one, and plummeted onto my left side at the base of the stairwell.

My first thought: I will not be defeated by this. I got up and was grateful I could walk without pain. More gratitude: it was my left side and not the dominant right. I went to my phone and called 911.

Camano Island Fire and Rescue was there right away and whisked me off to Skagit Regional Hospital in Mt. Vernon. X-rays were taken, and I waited in the outer area for my friend to come and take me home. Oh, did I mention that Gene had just that evening flown to San Francisco for the memorial of a friend? Timing…

I was quite alone in my house, but not for long. The front door was constantly revolving all weekend with friends coming over to teach me how to wear a sling, cut up vegetables, open bottles for me, perform a myriad of tasks reserved for two-handed people. I’m so grateful for them.

My son took me to my first infusion the following Monday. He held his tongue, but I knew he was furious that I could allow such a disaster to happen at the start of my chemotherapy. When Gene flew back the next day, more dismay and head-shaking that I could have been so careless.

So there you have it. This occurred on October 17, just eight weeks ago. It was fractured badly and the ice cream is nearly off the cone. Still quite painful, it’s not going to heal on its own. So I saw a shoulder surgeon this week and he’ll schedule surgery for as soon as possible, when treatment is over.

The sooner the better, so I can get through rehabilitation therapy and hopefully get back to paddling my kayak this summer. Am I too ambitious? Nah.

And I’m nothing if not determined…

Spiritual Levitation

“The serenity I am offered in Al-Anon is not an escape from life. Rather it is the power to find peacefulness within life.

Al-Anon does not promise me freedom from pain, sorrow, or difficult situations. It does, however, give me the opportunity to learn from others how to develop the necessary skills for maintaining peace of mind, even when life seems most unbearable…

Serenity is not about the end of pain. It’s about my ability to flourish peacefully no matter what life brings my way.”

In the movie, “The Shack,” Mac has a dream and in it he meets God. Mac had recently lost his young daughter, and in his anger and bitterness he lashed out at God. Who else to blame? God (a woman in the movie) came right back at Mac with Her own defense: She didn’t orchestrate all the misery on earth: Ukraine, The Holocaust, children starving in Nigeria. “Don’t blame me for all that,” She said.” My purpose is to help you rise above it.”

Wow, those are powerful words, and they remind me that I am not alone in my struggle, that God (or any form of a Higher Power) wants to partner with me if I accept him.

Al-Anon has the same purpose in my life. God doesn’t have the power to return my daughter to me. But if I continue my daily practice of gratitude, accept what I don’t have the ability to change, and have faith that God’s plan is unfolding for a greater good than I may ever see, I can live peacefully and even joyfully, savoring all the goodness that is in my life. It’s my choice.

Walking Through Cancer/Part 16

                              

                                         The Graveyard Shift

This is bizarre. It reminds me of when I had carpel tunnel syndrome last spring: I was in such burning pain that I couldn’t sleep. But that passed with time, and this insomnia will, too.

My new sleep schedule: I fall asleep between 7:00 and 9:00 at night; then I’m up at 11:30ish; I watch videos until my eyelids start drooping, usually a couple hours; then fall back to sleep until, if I’m lucky, 4:00 am, when my day begins. I drink a mocha, check emails, etc. At 5:00 I eat breakfast; at six I can start the work of the day: my writing. This consists of my daily gratitude journal and for the past six months my cancer diary. It’s pretty long, over twenty-five chapters, both before and after my diagnosis.

By 10:00, I start to fade and take a nap, about an hour. But before I nap, I eat a sizeable protein snack. After I wake up, I work on my computer until 12:00, lunchtime. Well, I guess some things coincide with real life! I go downstairs to watch Nicole Wallace, and even though the news is depressing, I love to listen to her  guests, especially Tim Miller.

Then I’m ready for another short nap, another snack, more writing, and then dinner with Gene. So, you see the routine is trying to glide into some semblance of normalcy. If I could just sleep through the night…

Why the insomnia? I only take prednisone for five mornings in a 3-week infusion cycle, so I’m not convinced it’s that, though it has a monstrous reputation. Then I read an article called “Why Do Cancer Patients Have Anxiety?” Geez, ya think?

Out of boredom, I started playing Dr. Google again. I read that my type of non-hodgkins lymphoma is not only incurable but has a very poor prognosis. Tell that to the lady who whizzed through 6 miles of Disneyland without getting tired!

The truth is that they are making huge strides in cancer research every day. Right now I’m undergoing my first line of treatment. My oncologist also has me in a clinical trial concurrent with my chemo. The theory is that if I go into remission, it might last a few years longer. Dr. Poh gave me a gold star when I saw her on Monday.

I believe in my heart that remission awaits me. I just don’t know. What I do know is that t-cell lymphoma is usually “refractory,” meaning it will come back with a vengeance, resisting the chemo I got before. This is when I’m glad it’s nearly 2025 and not twenty years ago. There are a number of new treatments they will surely try. But, as usual, I’m getting ahead of myself. I’m only halfway through this first line of treatment. February 3 is my last infusion. We’ll see what the PET scan shows, if  Dr. Poh can claim me to be in remission or not.

Fingers crossed!