Humility

Walking Through Cancer/Part 14

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                             Pink Clouds Don’t Last Forever

It would be so nice if they did.

I’ve had two chemo infusions, and the first one was such a breeze that I wondered what they put in the cocktail. No side effects, and I marveled at how easy chemotherapy was now. I felt wonderful afterwards, and the best part was that the fatigue in my legs was gone. I have energy that I haven’t felt in many months, and it’s been great to experience, especially when I remember how active I used to be with Gene. To have that taken away was hard.

So with my infusion last Tuesday, I expected the pink cloud to last. But it’s gotten a little rougher. The nausea has been really hard, so I keep popping nausea pills which have their own side effects. Heck, no one ever died of nausea. I’ll get through it, but I suspect it might get worse before it gets better. Chemo treatments end on February 3, and then I hope my hair starts to grow back quickly. Oh, I can dream…

All this is a small price to pay for possible remission from my lymphoma for ten more years. The Fred Hutch Cancer Center where I go to see Dr. Christina Poh is one of the best cancer centers in the country, right up there with Sloan-Kettering in New York and Anderson in Texas. And it’s right in my back yard. I’m so grateful to all the doctors and nurses there. They have pulled out all the stops and are exceptionally thorough. And no matter what happens down the road, I know that I’m getting the best care available to me. No doubts, a very secure feeling.

On the home front, my life is so fulfilling. There’s nothing like getting sick to inspire your friends and family to show how much they value you. We humans can be so lazy in that regard. I hope I never get that lazy again, and continue to pay it forward. Next Saturday Gene and I are flying to Anaheim, CA for a week with my kids and grandkids: Disneyland, Santa Monica, and LA! I’ve never been there and am so excited. We’ll go to a restaurant for Thanksgiving dinner, and it will be divine to not have to do all that cooking for once!

Then we fly back and I have two more infusions before Christmas. Gene will step up for me and do all the heavy lifting to prepare the house for Christmas: get the tree and decorate it, make dinner for us all while I hide behind a mask the whole time.

I used to dread the holidays because they were so sad for me as a child. But I’m not a child anymore. Now I see them as yet another opportunity to celebrate my life with my family in the present moment. And oh, what joy we give each other now. If we look for joy, we will find it.

Walking Through Cancer/Part 13

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                                               The Second Assault

Back in 1951, my father was 40 years old, with teeth like chalk. He drank too much and indulged in too many sweets. Predictably, he had so many cavities that his teeth were falling out. In those days, reparative work in dentistry was not what it is today, and he had what were left of his teeth ripped out and started wearing a full set of dentures.

As luck would have it, I inherited his soft teeth, and have had to undergo the same amount of reparative work in my own mouth. And for similar reasons. But dentistry has made remarkable strides in the last generation, and dentures are actually frowned upon now, not unless you are indigent. And, of course, they are the cheapest solution, but dentists want to cash in on all the new ways to save teeth: crowns, bridges, gum grafts, implants. I’ve had them all.

So when I got cancer, I knew that a common side effect to chemotherapy would be mouth sores and infections, along with possible damage to my existing teeth. This has happened to me. I usually wear a brace on the few lower teeth I have in order to protect them while I eat. And lately, I’ve become remiss in wearing it. I woke up this morning and felt one of them looser than before. So I quickly put the brace back in place and vowed to do no more chewing, just eat soft foods for the duration. This will not be hard for me: remember that I’m indulging in spaghetti and mashed potatoes, cake and ice cream lately. I’ve lost too much weight and really need to go in the other direction. Silver lining? You bet, and I’m relishing it!

To make this long story short, I will probably lose that tooth before I end my chemotherapy infusions. Hence—the second assault. More time spent in the dentist’s chair, a lot more money enriching my dentist from the cost of implants and whatever else I may need. It goes with the territory and cancer treatment.

The rest of my skeleton needs to be coddled as well, especially now. I have full-blown osteoporosis already, and I cannot afford to fall down again. But haven’t I said that before? J

If a smashed upper humerus and my arm in a sling for two months, with all the pain that accompanies it—and in the midst of all my cancer treatments—hasn’t taught this student a hard lesson about stairs and lights and slowing down…well, I do hope I continue to remain teachable. I have been duly humbled by this latest accident. And I’m hoping for a complete recovery in my arm, after I undergo much physical therapy.

But there are silver linings everywhere in life, even with cancer. I’ve written about them often in these twenty-two diary entries. The more I feel the darkness approaching me, the more I turn toward the light. It’s blinding sometimes!

Walking Through Cancer/Part 10

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One Tough Old Bird

Nearly three years ago, I tripped on a towel in our bathroom and fell, whacking my head against the porcelain tub. I broke six ribs, had a pneumothorax, and a teardrop fracture in my neck.

It was my fault, moving too fast in an unlit room, I made a promise to myself: I can never fall again. Period. Well, “Promises are like piecrusts…” Is that how it goes?

Five days before my first chemo infusion, I made the same mistake. I had a fall that resulted in a significant fracture of my humorous (upper arm). OMG, I can’t believe my timing! I’ve started out in a sling and the orthopedist saw me yesterday. Because of the cancer treatments, we’ve elected to avoid surgery for now and let it heal in the sling for six to eight weeks.

“Marilea, the human body is a remarkable machine. It will heal itself if we are patient and let it. If you use the sling for the next two months, slow down, and use the time to rest, it will eventually heal itself. You will need to do regular exercises and maybe work with a therapist regularly, but I think we can avoid surgery, which is problematic at your age, not to mention your cancer treatments.”

“Thanks, Doc. I’ll learn to be patient and let my arm heal on its own. See you next week for a checkup.”

Ladies, have you ever tried to get dressed, pull your pants down to go to the bathroom, floss your teeth, cut vegetables or an apple, just live your life the way two-handed people do? It’s damned inconvenient. And slows me down, probably a good thing.

So here’s another lemon in my life: the broken arm.

Lemonade? It could  have been SO much worse. I could have had a concussion, broken a hip, compromised my legs and ability to walk. Walking, oh wow, that’s number one on the gratitude list. If that were compromised I might have just had to put everything on the cancer side of the drama on hold until I could walk again! So lots of silver linings to pay attention to and deeply felt joy and gratitude that it’s just a broken arm. Oh, another glass of lemonade? My ability to see all the silver linings and allow them to elevate my spirit.

The spiritual part of this journey is absolutely essential to holistically healing my body. My alcoholism recovery is the basis, of course, for all this healing and has saved my life. Minimal whining, endless joy and gratitude, A deeply held faith that life is unfolding for me as it was meant to. I’m in God’s hands. And however much time I have left on this earth, I will live it to the best of my ability, and accept, gracefully accept, God’s will for me.

Amen, and stay tuned for the continued cancer part of my saga!

“The Road Less Traveled”

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I think we, who are willing to be in this room and undergo personal change, are brave souls.

When I joined Al-Anon, I was in my Fifties, and anxious to save another person I loved.  But oh what a joy it’s been to let go of that obsession, which was becoming so shrill and counterproductive.

I was relieved to turn the focus back on myself and learn that my faulty attitudes were the source of my pain, not the people around me.

Regarding the amends steps, it’s possible to overuse them, just as we might exaggerate our negative defects in the 4th step. I’ve done both! That’s why it’s so important to understand the purpose of amends: reaching personal freedom.

These are intended to be hopeful steps, not self-flagellation. Making this list and then acting on it is just another way to weed our garden. My husband’s always reminding me to weed close to what we’re growing, so that nothing interferes with the growth of the plant.

Making amends is not always pretty, and rather than freedom I sometimes look for forgiveness and closure. With my daughter, Annie, she threw them right back in my face. So I knew I was on the wrong track to expect absolution from her, and my sponsor helped me appreciate my efforts and then let them go.

My real reward has been surviving that loss without the need to punish myself for it.  Truth is, I’m really not that important! Things happen in life, and it’s not always my fault.

“Let Go And Let God”

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Let Go and Let God (p. 28, 95, 107, 125131,n163, 220, 294, 361) “Every day there are decisions to be made and problems to be solved. When we notice irritations growing into tensions, tensions into near-panic, and old fears returning, it is time to stop and turn to God. We find that when we supply the willingness, He supplies to power.”

Remember, “our best thinking got us into the rooms.” In other words, our minds can be dangerous places to go without some help. In Al-Anon we turn to a Higher Power. It can be God, a tree, or the group itself. As long as it’s not just us. Our egos and willfulness can blind us so much to taking a healthy course of action. And we’re just trying to help our children, so it’s easy to rationalize and justify our actions. That’s where educating myself about the disease gripping my daughter has been so critical for me. Over time I finally accepted that I didn’t have the power to save her from her disease. That was a hard pill to swallow, but a necessary one. I learned to let go and concentrate on what I could control. That’s when I started to feel free and serene and able to move forward with my life. I wish the same for all my brothers and sisters in these rooms. God Bless!

“Aye, There’s The Rub…”

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The Serenity Prayer (Part 3)

 “Courage to change the things I can…

When my ego is involved and there’s a calculated risk, I’m going to be gutsy, not courageous. It takes guts to ski a steep trail; I alone will be rewarded. Courage is different. There is always a parenthesis of fear in Courage; the risk becomes minor. This parenthesis remains a void of fear until it is filled by God. There is no ego in a courageous act. Courage can ask for help. It is often something done for someone else, or it may be something I am not attracted to doing at all. I may lose by doing it. The courageous act is often the unpopular choice, to do or not to do. The results are seldom only mine. It requires more of me than I want to think I can do, alone. After it is finished, gratitude to someone or something is usually in order. Courage requires a moral strength not of myself. This strength is given by faith.”

EGO—Easing God Out—is my enemy in many ways. It makes me willful and arrogant. It’s the great separator—of me from people, of me from God. When I let God back in again, my life and my relationships seem to work better. And God has always given me the courage to do what is difficult in relation to my daughter. My faith in Him has given me the strength to do what I believe is right, regardless of the consequences. I believe things are unfolding as they are meant to. When I surrender to this belief, I am at peace.

Mindfulness

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From SESH, June 27: T.H.I.N.K.

Am I thoughtful?

Am I honest?

Are my words intelligent?

Are they necessary?

Am I kind?

I love this acronym because it shows how emotions can collide with rational thinking. It also shows that even when we are being rational, we sometimes say the wrong thing. As a writer, I’m aware of the power of words—how they can persuade, or repel, how they can win friends, or lose them. I’ve done them all! When I get too emotional, I’m sure to say the wrong thing. Experience has taught me to use this acronym to weigh carefully what comes out of my mouth. To ask myself if what I say is necessary, or am I just spouting off, releasing steam like Old Faithful in Yellowstone? Am I being honest, or are my words brutal and tactless? Do I care how my words might affect the other person? Am I so emotional, in the moment, that my words might appear unintelligible? And most of all, do my words demonstrate kindness towards the other person?

Of all those terms, kindness for me is the most far-reaching and important. No matter what happens to us in our lives, no matter how deeply we are humbled by our circumstances and shortcomings, if we can remain kind in the face of everything, then that says a lot about our character.

“Thoughts become words. Choose the good ones!”

Playing God

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Recovery in the Program, time and the perspective it brings us, has given me a lot of new information. My own recovery has also graced me with a healthy amount of humility. I used to confuse humility with humiliation. I used to think that admitting my faults would produce shame in me and threaten my self-worth. But in recent years I have a different understanding of this word.

Having taken the Fourth Step (“Made a searching and fearless moral inventory of ourselves”), and later the Seventh Step (“Humbly asked Him to remove our shortcomings”), I began to see myself in a healthier light. I began to see myself in relation to my higher power. I am just a speck in the universe, no more, no less. This need to stay right-sized keeps me out of trouble. I’ve been playing God for much of my life. It doesn’t matter anymore why; what matters now is that I remain ever mindful of the amount of power I have over others and stop trying to play God with them. They have their own Higher Power, and I’m not It!

What Makes Rainbows?

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From Courage to Change, March 14:

“One beautiful day, a man sat down under a tree, not noticing it was full of pigeons. Shortly, the pigeons did what pigeons do best. The man shouted at the pigeons as he stormed away, resenting the pigeons as well as the offending material. But then he realized that the pigeons were merely doing what pigeons do, just because they’re pigeons and not because he was there.

Active alcoholics are people who drink. They don’t drink because of you or me, but because they are alcoholics. No matter what I do, I will not change this fact, not with guilt, shouting, begging, distracting, hiding money or bottles or keys, lying, threatening, or reasoning. I didn’t cause alcoholism. I can’t control it. And I can’t cure it. I can continue to struggle and lose. Or I can accept that I am powerless over alcohol and alcoholism, and let Al-Anon help me to redirect the energy I’ve spent on fighting this disease into recovering from its effects.

It’s not easy to watch someone I love continue to drink, but I can do nothing to stop them. If I can see how unmanageable my life has become, I can admit that I am powerless over this disease. Then I can really begin to make my life better.”

My recovery has been, among other things, about redirecting my energy into a positive force for my loved ones and me. Before I learned the tools of recovery, though I appeared to be content and doing well, I was deeply troubled and unhappy on the inside. Then, when my daughter  became a substance abuser, it all boiled to the surface. I love my daughter very much, and I would have done anything in my power to save her.

There’s that word “power” that we hear so much in the recovery rooms. And that’s good because power and ego so often go together, and I’ve had to learn to let go of both of them. I spent several years trying to save her, but I made many mistakes and in the end was not able to influence her choices. Just like the pigeons, she’s gonna do what she has to do. I can only love her and be strong for her if and when she goes into recovery. I am, therefore, concentrating on saving myself. And if it weren’t for my daughter, I probably wouldn’t even be doing that. Beauty is often born out of loss. I still have a heart that can love—and the eyes to enjoy the beautiful sunsets where I live in Puget Sound.

“God, Grant Me The Serenity To Know The Difference…”

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From Each Day A New Beginning, March 23:

“’On occasion I realize it’s easier to say the Serenity Prayer and take that leap of faith than it is to continue doing what I’m doing.’

Most of our struggles, today as in the past, are attached to persons and situations we are trying forcibly to control. How righteous our attitudes generally are! And so imposing is our behavior that we are met with resistance, painful resistance. Our recourse is now and always to ‘accept those things we cannot change, and willingly change that which we can.’ Our personal struggles will end when we are fully committed to the Serenity Prayer.

‘The wisdom to know the difference is mine today.’”

Oh yes, the wisdom to know the difference…how often our egos get in the way of living well. We want what we want when we want it! We want our substance abuser to give up drugs and come back to the living. If only that choice were in our hands…

But it’s not. Only substance abusers have the power to reach for their own recovery…and we have the power to reach for our own. That has been my choice for several years now, and I’m learning to be happy despite losing my daughter to the living death of heroin addiction.

A good friend told me that ego is what separates us from God and each other. Ego (Easing God Out) is often our enemy and keeps us from the serenity we so desperately long for. So I’ve learned to turn my pain over to God (Step Three), to “let go and let God,” and that has made all the difference in my life.